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Hospital to home paediatric enteral nutrition--parents need support.
Shortall, C Aherne, M Boland, S Sheane, R Ward, F Hensey, O
Shortall, C
Aherne, M
Boland, S
Sheane, R
Ward, F
Hensey, O
Advisors
Editors
Other Contributors
Departments
Date
2015-02
Date Submitted
Keywords
CHILD HEALTH
ENTERAL NUTRITION
HEALTH EDUCATION
ENTERAL NUTRITION
HEALTH EDUCATION
Other Subjects
Subject Mesh
Caregivers
Child
Child, Hospitalized
Cross-Sectional Studies
Enteral Nutrition
Home Care Services
Humans
Parents
Patient Discharge
Questionnaires
Child
Child, Hospitalized
Cross-Sectional Studies
Enteral Nutrition
Home Care Services
Humans
Parents
Patient Discharge
Questionnaires
Planned Date
Start Date
Collaborators
Principal Investigators
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Main Article
Adobe PDF, 11.87 KB
Alternative Titles
Publisher
Abstract
This study assessed the provision of education and support to parents of children on home enteral nutrition (HEN), current dietetic support available and perceived challenges facing parents and carers. From the 39 responses (13%), 29 (83%, n = 35) parents suggested services for HEN need improvement. 29 (74%, n = 39) parents wanted more structured follow up and 22 (56%) would like one person to co-ordinate HEN, education and discharge. 7 parents (18%) reported a need for further education of health care professionals (HCP). Hospital dietitians were the most common HCPs reported to provide support to patients following discharge. Specialist paediatric HEN dietetic services working in a dedicated HEN team, who would provide accurate training and education and liaise with both parents and community care services post discharge should be in place. This would facilitate transfer to community care, reduce hospital re-admissions, outpatient department attendances and costs.
Language
en
ISSN
0332-3102
eISSN
ISBN
DOI
PMID
25803955