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    Living with relapsed myeloma: Symptoms and self-care strategies.

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    Authors
    Cormican, Orlaith
    Dowling, Maura
    Issue Date
    2018-04-01
    Keywords
    carers
    focus groups
    patients
    qualitative
    relapsed
    symptoms
    MYELOMA
    SELF CARE
    SYMPTOMS
    QUALITY OF LIFE
    
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    Show full item record
    URI
    http://hdl.handle.net/10147/624813
    DOI
    10.1111/jocn.14232
    PubMed ID
    29266501
    Abstract
    Aims and Objectives To explore which symptoms relapsed myeloma patients experience and what self‐care strategies are used. Methods This was a qualitative study utilising focus group interviews (n = 4) with relapsed myeloma patients (n = 15) and carers (n = 9). The focus groups were analysed and guided by thematic analysis. Results Three major themes with subthemes were identified following analysis of the interview data: “difficult symptoms; “self‐care” and “feeling vulnerable.” These findings indicate the challenges relapsed myeloma patients experience with ongoing symptoms and highlight the importance of continuity of care. Conclusions Symptom management for myeloma patients remains complex due to the array of treatments given. These patients require holistic care and thorough regular assessments to help them cope with the adverse effects on their physical and psychological health. For patients with a long‐term diagnosis of myeloma, self‐management workshops and regular education sessions may be of benefit.
    Item Type
    Article
    Language
    en
    ISSN
    1365-2702
    ae974a485f413a2113503eed53cd6c53
    10.1111/jocn.14232
    Scopus Count
    Collections
    Galway University Hospitals

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