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dc.contributor.authorEarly, Frances
dc.contributor.authorLettis, Matthew
dc.contributor.authorWinders, Sarah-Jane
dc.contributor.authorFuld, Jonathan
dc.date.accessioned2019-06-14T09:17:36Z
dc.date.available2019-06-14T09:17:36Z
dc.date.issued2019-04-12
dc.identifier.issn2055-1010
dc.identifier.pmid30979889
dc.identifier.doi10.1038/s41533-019-0124-z
dc.identifier.urihttp://hdl.handle.net/10147/624732
dc.descriptionChronic obstructive pulmonary disease (COPD) has a negative impact on people's quality of life affecting daily activities and mental and emotional well-being. Healthcare services need to understand what patients want and need. We used a co-production methodology, Working Together for Change, not previously used in a COPD setting to determine what matters to people with COPD. Forty patients took part in one-to-one discussions to identify what was working well, not working well and what was important for the future in terms of their COPD care. The responses were analysed in two one-day co-production workshops involving COPD patients, carers and professionals. The six highest priority themes around what's not working well were: 'I don't think the right hand knows what the left hand is doing', 'I can't get appointments when I want them', 'I'm not treated as a person', 'I can't do what I want to do', 'I'm anxious and depressed' and 'I can't eat well.' Professionals gained powerful insights into the difficulties of COPD through their interactions with patients in the workshops. What mattered to patients encompassed meaning, purpose and relationships beyond immediate medical needs and underlines the need for patient-centred holistic approaches to COPD care and support.en_US
dc.language.isoenen_US
dc.publishernpj Primary Care Respiratory Medicineen_US
dc.rightsAttribution-NonCommercial-NoDerivs 3.0 United States*
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/3.0/us/*
dc.subjectCHRONIC OBSTRUCTIVE PULMONARY DISEASEen_US
dc.subjectPATIENT CENTERED CAREen_US
dc.subjectQUALITY OF LIFEen_US
dc.titleWhat matters to people with COPD: outputs from Working Together for Change.en_US
dc.typeArticleen_US
dc.identifier.journalnpj Primary Care Respiratory Medicineen_US
dc.source.journaltitleNPJ primary care respiratory medicine
refterms.dateFOA2019-06-14T09:17:37Z


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