Show simple item record

dc.contributor.authorFox, Siobhán
dc.contributor.authorFitzGerald, Carol
dc.contributor.authorHarrison Dening, Karen
dc.contributor.authorIrving, Kate
dc.contributor.authorKernohan, W George
dc.contributor.authorTreloar, Adrian
dc.contributor.authorOliver, David
dc.contributor.authorGuerin, Suzanne
dc.contributor.authorTimmons, Suzanne
dc.date.accessioned2017-07-20T07:55:17Z
dc.date.available2017-07-20T07:55:17Z
dc.date.issued2017-07-14
dc.identifier.citationBetter palliative care for people with a dementia: summary of interdisciplinary workshop highlighting current gaps and recommendations for future research. 2017, 17 (1):9 BMC Palliat Careen
dc.identifier.issn1472-684X
dc.identifier.pmid28705196
dc.identifier.doi10.1186/s12904-017-0221-0
dc.identifier.urihttp://hdl.handle.net/10147/621496
dc.description: Dementia is the most common neurological disorder worldwide and is a life-limiting condition, but very often is not recognised as such. People with dementia, and their carers, have been shown to have palliative care needs equal in extent to those of cancer patients. However, many people with advanced dementia are not routinely being assessed to determine their palliative care needs, and it is not clear why this is soen
dc.description.abstractDementia is the most common neurological disorder worldwide and is a life-limiting condition, but very often is not recognised as such. People with dementia, and their carers, have been shown to have palliative care needs equal in extent to those of cancer patients. However, many people with advanced dementia are not routinely being assessed to determine their palliative care needs, and it is not clear why this is so.
dc.description.abstractAn interdisciplinary workshop on "Palliative Care in Neurodegeneration, with a focus on Dementia", was held in Cork, Ireland, in May 2016. The key aim of this workshop was to discuss the evidence base for palliative care for people with dementia, to identify 'gaps' for clinical research, and to make recommendations for interdisciplinary research practice. To lead the discussion throughout the day a multidisciplinary panel of expert speakers were brought together, including both researchers and clinicians from across Ireland and the UK. Targeted invitations were sent to attendees ensuring all key stakeholders were present to contribute to discussions. In total, 49 experts representing 17 different academic and practice settings, attended. Key topics for discussion were pre-selected based on previously identified research priorities (e.g. James Lind Alliance) and stakeholder input. Key discussion topics included: i. Advance Care Planning for people with Dementia; ii. Personhood in End-of-life Dementia care; iii. Topics in the care of advanced dementia at home. These topics were used as a starting point, and the ethos of the workshop was that the attendees could stimulate discussion and debate in any relevant area, not just the key topics, summarised under iv. Other priorities.
dc.description.abstractThe care experienced by people with dementia and their families has the potential to be improved; palliative care frameworks may have much to offer in this endeavour. However, a solid evidence base is required to translate palliative care into practice in the context of dementia. This paper presents suggested research priorities as a starting point to build this evidence base. An interdisciplinary approach to research and priority setting is essential to develop actionable knowledge in this area.
dc.language.isoenen
dc.publisherBMC Palliative Careen
dc.rightsArchived with thanks to BMC palliative careen
dc.subjectDEMENTIAen
dc.subjectPALLIATIVE CAREen
dc.titleBetter palliative care for people with a dementia: summary of interdisciplinary workshop highlighting current gaps and recommendations for future research.en
dc.typeArticleen
dc.identifier.journalBMC palliative careen
refterms.dateFOA2018-08-27T22:43:14Z
html.description.abstractDementia is the most common neurological disorder worldwide and is a life-limiting condition, but very often is not recognised as such. People with dementia, and their carers, have been shown to have palliative care needs equal in extent to those of cancer patients. However, many people with advanced dementia are not routinely being assessed to determine their palliative care needs, and it is not clear why this is so.
html.description.abstractAn interdisciplinary workshop on "Palliative Care in Neurodegeneration, with a focus on Dementia", was held in Cork, Ireland, in May 2016. The key aim of this workshop was to discuss the evidence base for palliative care for people with dementia, to identify 'gaps' for clinical research, and to make recommendations for interdisciplinary research practice. To lead the discussion throughout the day a multidisciplinary panel of expert speakers were brought together, including both researchers and clinicians from across Ireland and the UK. Targeted invitations were sent to attendees ensuring all key stakeholders were present to contribute to discussions. In total, 49 experts representing 17 different academic and practice settings, attended. Key topics for discussion were pre-selected based on previously identified research priorities (e.g. James Lind Alliance) and stakeholder input. Key discussion topics included: i. Advance Care Planning for people with Dementia; ii. Personhood in End-of-life Dementia care; iii. Topics in the care of advanced dementia at home. These topics were used as a starting point, and the ethos of the workshop was that the attendees could stimulate discussion and debate in any relevant area, not just the key topics, summarised under iv. Other priorities.
html.description.abstractThe care experienced by people with dementia and their families has the potential to be improved; palliative care frameworks may have much to offer in this endeavour. However, a solid evidence base is required to translate palliative care into practice in the context of dementia. This paper presents suggested research priorities as a starting point to build this evidence base. An interdisciplinary approach to research and priority setting is essential to develop actionable knowledge in this area.


Files in this item

Thumbnail
Name:
Better Pall.pdf
Size:
580.6Kb
Format:
PDF
Description:
Report

This item appears in the following Collection(s)

Show simple item record