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    Parents' perspectives of the transition to home when a child has complex technological health care needs.

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    IJIC-15-2015035.pdf
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    Authors
    Brenner, Maria
    Larkin, Philip J
    Hilliard, Carol
    Cawley, Des
    Howlin, Frances
    Connolly, Michael
    Issue Date
    2015-09
    Keywords
    CHILD HEALTH
    HOME CARE
    PARENTS
    
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    Citation
    Parents' perspectives of the transition to home when a child has complex technological health care needs., 15:e035 Int J Integr Care
    Publisher
    International journal of integrated care
    Journal
    International journal of integrated care
    URI
    http://hdl.handle.net/10147/620953
    PubMed ID
    26528098
    Abstract
    There is an increasing number of children with complex care needs, however, there is limited evidence of the experience of families during the process of transitioning to becoming their child's primary care giver. The aim of this study was to explore parents' perspectives of the transition to home of a child with complex respiratory health care needs.
    Parents of children with a tracheostomy with or without other methods of respiratory assistance, who had transitioned to home from a large children's hospital in the last 5 years, were invited to participate in the interviews. Voice-centred relational method of qualitative analysis was used to analyse parent responses.
    Four key themes emerged from the interviews including "stepping stones: negotiating the move to home", "fighting and frustration", "questioning competence" and "coping into the future".
    There is a need for clear and equitable assessments and shared policies and protocols for the discharge of children with complex care needs. Direction and support are required at the level of health service policy and planning to redress these problems. This study provides evidence that the transition of children with complex care needs from hospital to home is a challenging dynamic in need of further improvement and greater negotiation between the parent and health service provider. There are tangible issues that could be addressed including the introduction of a standardised approach to assessment of the needs of the child and family in preparation for discharge and for clear timelines and criteria for reassessment of needs once at home.
    Item Type
    Article
    Language
    en
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