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    Development and Progress of Ireland's Biobank Network: Ethical, Legal, and Social Implications (ELSI), Standardized Documentation, Sample and Data Release, and International Perspective

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    Authors
    Mee, Blanaid
    Gaffney, Eoin
    Glynn, Sharon A.
    Donatello, Simona
    Carroll, Paul
    Connolly, Elizabeth
    Mc Garrigle, Sarah
    Boyle, Terry
    Flannery, Delia
    Sullivan, Francis J.
    McCormick, Paul
    Griffin, Mairead
    Muldoon, Cian
    Show allShow less
    Affiliation
    1St. James's Hospital, Dublin, Ireland. 2Prostate Cancer Institute, National University of Ireland Galway, Galway, Ireland. 3Beaumont Hospital, Dublin, Ireland. 4Trinity Centre for Health Sciences, Institute of Molecular Medicine, Dublin, Ireland. 5Department of Radiation Oncology, Galway University Hospital, Galway, Ireland. 6Cork University Hospital, Cork, Ireland. 7Barrister-at-Law, Four Courts, Dublin and Lecturer in Legal Medicine, Forensic and Legal Medicine, School of Medicine and Medical Sciences, Dublin, Ireland. 8HRB Clinical Research Facilities Galway & Dublin, NUI Galway and Trinity College Dublin, Ireland
    Issue Date
    2013-02-19
    Local subject classification
    BIOBANKING
    NETWORKING
    
    Metadata
    Show full item record
    Citation
    Blanaid Mee, Eoin Gaffney, Sharon A. Glynn, Simona Donatello, Paul Carroll, Elizabeth Connolly, Sarah Mc Garrigle, Terry Boyle, Delia Flannery, Francis J. Sullivan, Paul McCormick, Mairead Griffin, Cian Muldoon, Joanna Fay, Tony O'Grady, Elaine Kay, Joe Eustace, Louise Burke, Asim A. Sheikh, Stephen Finn, Richard Flavin, and Francis J. Giles. Biopreservation and Biobanking. February 2013, 11(1): 3-11. doi:10.1089/bio.2012.0028.
    Publisher
    Mary Ann Liebert Inc.
    URI
    http://hdl.handle.net/10147/301914
    Additional Links
    http://online.liebertpub.com/doi/full/10.1089/bio.2012.0028
    Abstract
    Biobank Ireland Trust (BIT) was established in 2004 to promote and develop an Irish biobank network to benefit patients, researchers, industry, and the economy. The network commenced in 2008 with two hospital biobanks and currently consists of biobanks in the four main cancer hospitals in Ireland. The St. James's Hospital (SJH) Biobank coordinates the network. Procedures, based on ISBER and NCI guidelines, are standardized across the network. Policies and documents—Patient Consent Policy, Patient Information Sheet, Biobank Consent Form, Sample and Data Access Policy (SAP), and Sample Application Form have been agreed upon (after robust discussion) for use in each hospital. An optimum sequence for document preparation and submission for review is outlined. Once consensus is reached among the participating biobanks, the SJH biobank liaises with the Research and Ethics Committees, the Office of the Data Protection Commissioner, The National Cancer Registry (NCR), patient advocate groups, researchers, and other stakeholders. The NCR provides de-identified data from its database for researchers via unique biobank codes. ELSI issues discussed include the introduction of prospective consent across the network and the return of significant research results to patients. Only 4 of 363 patients opted to be re-contacted and re-consented on each occasion that their samples are included in a new project. It was decided, after multidisciplinary discussion, that results will not be returned to patients. The SAP is modeled on those of several international networks. Biobank Ireland is affiliated with international biobanking groups—Marble Arch International Working Group, ISBER, and ESBB. The Irish government continues to deliberate on how to fund and implement biobanking nationally. Meanwhile BIT uses every opportunity to promote awareness of the benefits of biobanking in events and in the media.
    Item Type
    Article
    Language
    en
    Sponsors
    NIH grant number R21 CA139476-01
    Collections
    St. James's Hospital

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