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dc.contributor.authorO'Shea, Eadaoln
dc.contributor.authorCoughlan, Michael
dc.contributor.authorCorrigan, Helen
dc.contributor.authorMcKee, Gabrielle
dc.date.accessioned2013-02-04T15:54:16Z
dc.date.available2013-02-04T15:54:16Z
dc.date.issued2012
dc.identifier.citationEvaluation of a nurse-led haemophilia counselling service., 21 (14):864-6, 868-70 Br J Nursen_GB
dc.identifier.issn0966-0461
dc.identifier.pmid23252169
dc.identifier.urihttp://hdl.handle.net/10147/268253
dc.description.abstractGenetic counselling and testing for females with a family history of haemophilia has long been advocated. However, there is little research in regard to clients' satisfaction with the existing counselling models in haemophilia, and in particular with nurse-led clinics. The purpose of this study was to evaluate whether clients were satisfied with a nurse-led carrier testing clinic and counselling service. A retrospective quantitative study of clients' satisfaction and perceived knowledge was undertaken using an anonymous questionnaire. A sample of 42 women who had attended the clinic in the last 12 months was identified. The response rate for the study was 71% (n = 30).Two thirds of the respondents were 35 years of age or younger, 93% had a family history of haemophilia and 56% were diagnosed as carriers. Perceived understanding and knowledge increased significantly between the first and second appointments (p < 0.001). Overall, the study identified a high level of client satisfaction with the nurse-led carrier testing clinic and counselling service.
dc.language.isoenen
dc.rightsArchived with thanks to British journal of nursing (Mark Allen Publishing)en_GB
dc.subject.meshAdult
dc.subject.meshAmbulatory Care Facilities
dc.subject.meshCounseling
dc.subject.meshFemale
dc.subject.meshGenetic Counseling
dc.subject.meshHemophilia A
dc.subject.meshHumans
dc.subject.meshIreland
dc.subject.meshMale
dc.subject.meshPatient Education as Topic
dc.subject.meshProgram Evaluation
dc.subject.meshRetrospective Studies
dc.titleEvaluation of a nurse-led haemophilia counselling service.en_GB
dc.typeArticleen
dc.contributor.departmentNational Centre for Hereditary Coagulation Disorders, St James Hospital, Dublin.en_GB
dc.identifier.journalBritish journal of nursing (Mark Allen Publishing)en_GB
dc.description.provinceLeinsteren
html.description.abstractGenetic counselling and testing for females with a family history of haemophilia has long been advocated. However, there is little research in regard to clients' satisfaction with the existing counselling models in haemophilia, and in particular with nurse-led clinics. The purpose of this study was to evaluate whether clients were satisfied with a nurse-led carrier testing clinic and counselling service. A retrospective quantitative study of clients' satisfaction and perceived knowledge was undertaken using an anonymous questionnaire. A sample of 42 women who had attended the clinic in the last 12 months was identified. The response rate for the study was 71% (n = 30).Two thirds of the respondents were 35 years of age or younger, 93% had a family history of haemophilia and 56% were diagnosed as carriers. Perceived understanding and knowledge increased significantly between the first and second appointments (p < 0.001). Overall, the study identified a high level of client satisfaction with the nurse-led carrier testing clinic and counselling service.


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