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    Evaluation of a nurse-led haemophilia counselling service.

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    Authors
    O'Shea, Eadaoln
    Coughlan, Michael
    Corrigan, Helen
    McKee, Gabrielle
    Affiliation
    National Centre for Hereditary Coagulation Disorders, St James Hospital, Dublin.
    Issue Date
    2012
    MeSH
    Adult
    Ambulatory Care Facilities
    Counseling
    Female
    Genetic Counseling
    Hemophilia A
    Humans
    Ireland
    Male
    Patient Education as Topic
    Program Evaluation
    Retrospective Studies
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    Citation
    Evaluation of a nurse-led haemophilia counselling service., 21 (14):864-6, 868-70 Br J Nurs
    Journal
    British journal of nursing (Mark Allen Publishing)
    URI
    http://hdl.handle.net/10147/268253
    PubMed ID
    23252169
    Abstract
    Genetic counselling and testing for females with a family history of haemophilia has long been advocated. However, there is little research in regard to clients' satisfaction with the existing counselling models in haemophilia, and in particular with nurse-led clinics. The purpose of this study was to evaluate whether clients were satisfied with a nurse-led carrier testing clinic and counselling service. A retrospective quantitative study of clients' satisfaction and perceived knowledge was undertaken using an anonymous questionnaire. A sample of 42 women who had attended the clinic in the last 12 months was identified. The response rate for the study was 71% (n = 30).Two thirds of the respondents were 35 years of age or younger, 93% had a family history of haemophilia and 56% were diagnosed as carriers. Perceived understanding and knowledge increased significantly between the first and second appointments (p < 0.001). Overall, the study identified a high level of client satisfaction with the nurse-led carrier testing clinic and counselling service.
    Item Type
    Article
    Language
    en
    ISSN
    0966-0461
    Collections
    St. James's Hospital

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