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    Symposium 6: Young people, artificial nutrition and transitional care. The nutritional challenges of the young adult with cystic fibrosis: transition.

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    Authors
    Morton, Alison M
    Affiliation
    Adult Cystic Fibrosis Unit and Department of Nutrition and Dietetics, St James', Hospital, Beckett Street, Leeds LS9 7TF, UK. Alison.morton@leedsth.nhs.uk
    Issue Date
    2012-02-01T10:45:05Z
    MeSH
    Adult
    Child
    Continuity of Patient Care
    Cystic Fibrosis/complications/*diet therapy
    Energy Intake
    Enteral Nutrition
    Female
    Humans
    Male
    Malnutrition/*prevention & control
    Nutritional Requirements
    Nutritional Status
    Vitamins/therapeutic use
    Young Adult
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    Metadata
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    Citation
    Proc Nutr Soc. 2009 Nov;68(4):430-40. Epub 2009 Aug 24.
    Journal
    The Proceedings of the Nutrition Society
    URI
    http://hdl.handle.net/10147/207800
    DOI
    10.1017/S0029665109990176
    PubMed ID
    19698200
    Abstract
    Cystic fibrosis (CF) is a complex multisystem disorder affecting mainly the gastrointestinal tract and respiratory system. Intestinal malabsorption occurs in approximately 90% of patients. In the past, malnutrition was an inevitable consequence of disease progression, leading to poor growth, impaired respiratory muscle function, decreased exercise tolerance and immunological impairment. A positive association between body weight and height and survival has been widely reported. The energy requirements of patients with CF vary widely and generally increase with age and disease severity. For many young adults requirements will be 120-150% of the age-related estimated average requirement. To meet these energy needs patients are encouraged to eat a high-fat high-energy diet with appropriate pancreatic enzyme supplements. Many patients are unable to achieve an adequate intake as a result of a variety of factors including chronic poor appetite, infection-related anorexia, gastro-oesophageal reflux and abdominal pain. Oral energy supplements and enteral tube feeding are widely used. Nutritional support has been shown to improve nutritional status and stabilise or slow the rate of decline in lung function. With such emphasis on nutritional intake and nutritional status throughout life, poor adherence to therapies and issues relating to body image are emerging. The median survival of patients with CF is increasing. CF is now considered a life-limiting disease of adulthood rather than a terminal childhood illness. With increased longevity new challenges are emerging that include the transition of young adults with CF to adult services, CF-related diabetes, disordered eating, osteoporosis, liver disease and transplantation.
    Language
    eng
    ISSN
    0029-6651 (Print)
    0029-6651 (Linking)
    ae974a485f413a2113503eed53cd6c53
    10.1017/S0029665109990176
    Scopus Count
    Collections
    St. James's Hospital

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