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    Health-related quality of life after prolonged pediatric intensive care unit stay.

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    Authors
    Conlon, Niamh P
    Breatnach, Cormac
    O'Hare, Brendan P
    Mannion, David W
    Lyons, Barry J
    Affiliation
    Department of Anaesthesia and Intensive Care Medicine, Our Lady's Hospital for, Sick Children, Crumlin Road, Crumlin, Dublin, Ireland.
    Issue Date
    2012-02-01T10:24:53Z
    MeSH
    Adolescent
    Age Factors
    Child
    Child, Preschool
    Cohort Studies
    Continuity of Patient Care/statistics & numerical data
    Critical Care/*methods
    Critical Illness/therapy
    Female
    Follow-Up Studies
    Hospitals, University
    Humans
    *Intensive Care Units, Pediatric
    Ireland
    Length of Stay
    Long-Term Care
    Male
    Patient Discharge
    Probability
    *Quality of Life
    Retrospective Studies
    Risk Factors
    Sex Factors
    Statistics, Nonparametric
    Time Factors
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    Citation
    Pediatr Crit Care Med. 2009 Jan;10(1):41-4.
    Journal
    Pediatric critical care medicine : a journal of the Society of Critical Care, Medicine and the World Federation of Pediatric Intensive and Critical Care, Societies
    URI
    http://hdl.handle.net/10147/207433
    DOI
    10.1097/PCC.0b013e31819371f6
    PubMed ID
    19057434
    Abstract
    OBJECTIVE: To investigate the long-term health-related quality of life (HRQOL) outcomes for patients requiring at least 28 days of pediatric intensive care. DESIGN: Retrospective cohort and prospective follow-up study. SETTING: A 21-bed pediatric intensive care unit (PICU) in a university-affiliated, tertiary referral pediatric hospital. PATIENTS: One hundred ninety-three patients who spent 28 days or longer in the PICU between January 1, 1997 and December 31, 2004. INTERVENTIONS: Quality of life was measured using the Pediatric Quality of Life Inventory (Peds QL 4.0) parent-proxy version at 2 to 10 yrs after discharge. The PedsQL 4.0 is a modular measure of HRQOL, which is reliable in children aged 2 to 18 yrs. It generates a total score and physical, emotional, social, school, and psychosocial subscores. MEASUREMENTS AND MAIN RESULTS: Of the 193 patients, 41 died during their PICU admission and 27 died between PICU discharge and follow-up. Quality of life questionnaires were posted to parents of 108 of the 125 survivors and 70 were returned completed. Forty children (57.1%) had scores indicating a normal quality of life, whereas 30 (42.9%) had scores indicating impaired HRQOL. Of these, 14 (20%) had scores indicating poor quality of life with ongoing disabling health problems requiring hospitalization or the equivalent. CONCLUSIONS: Our results indicate that, while long PICU stay is associated with significant mortality, the long-term HRQOL is normal for the majority of surviving children.
    Language
    eng
    ISSN
    1529-7535 (Print)
    1529-7535 (Linking)
    ae974a485f413a2113503eed53cd6c53
    10.1097/PCC.0b013e31819371f6
    Scopus Count
    Collections
    Children's Health Ireland (CHI) at Crumlin

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