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    Self-management education for cystic fibrosis.

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    Authors
    Savage, Eileen
    Beirne, Paul V
    Ni Chroinin, Muireann
    Duff, Alistair
    Fitzgerald, Tony
    Farrell, Dawn
    Affiliation
    Catherine McAuley School of Nursing & Midwifery Brookfield Health Sciences Complex, University College Cork, Cork, Ireland.
    Issue Date
    2011
    MeSH
    Adolescent
    Adult
    Caregivers
    Child
    Cystic Fibrosis
    Humans
    Nutrition Therapy
    Parents
    Patient Education as Topic
    Randomized Controlled Trials as Topic
    Self Care
    Young Adult
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    Citation
    Self-management education for cystic fibrosis. 2011 (7):CD007641 Cochrane Database Syst Rev
    Journal
    Cochrane database of systematic reviews (Online)
    URI
    http://hdl.handle.net/10147/200954
    DOI
    10.1002/14651858.CD007641.pub2
    PubMed ID
    21735415
    Abstract
    Self-management education may help patients with cystic fibrosis and their families to choose, monitor and adjust treatment requirements for their illness, and also to manage the effects of illness on their lives. Although self-management education interventions have been developed for cystic fibrosis, no previous systematic review of the evidence of effectiveness of these interventions has been conducted.
    To assess the effects of self-management education interventions on improving health outcomes for patients with cystic fibrosis and their caregivers
    We searched the Cochrane Cystic Fibrosis and Genetic Disorders Group Trials Register (date of the last search: 23 February 2011).We also searched databases through EBSCO (CINAHL; Psychological and Behavioural Sciences Collection; PsychInfo; SocINDEX) and Elsevier (EMBASE) and handsearched relevant journals and conference proceedings (date of the last searches: 30th March 2011).
    Randomised controlled trials, quasi-randomised controlled trials or controlled clinical trials comparing different types of self-management education for cystic fibrosis or comparing self-management education with standard care or no intervention.
    Two authors assessed trial eligibility and risk of bias. Three authors extracted data.
    Four trials (involving a total of 269 participants) were included. The participants were children with cystic fibrosis and their parents or caregivers in three trials and adults with cystic fibrosis in one trial. The trials compared four different self-management education interventions versus standard treatment: (1) a training programme for managing cystic fibrosis in general; (2) education specific to aerosol and airway clearance treatments; (3) disease-specific nutrition education; and (4) general and disease-specific nutrition education. Training children to manage cystic fibrosis in general had no statistically significant effects on weight after six to eight weeks, mean difference -7.74 lb (95% confidence interval -35.18 to 19.70). General and disease-specific nutrition education for adults had no statistically significant effects on: pulmonary function (forced expiratory volume at one second), mean difference -5.00 % (95% confidence interval -18.10 to 8.10) at six months and mean difference -5.50 % (95% confidence interval -18.46 to 7.46) at 12 months; or weight, mean difference - 0.70 kg (95% confidence interval -6.58 to 5.18) at six months and mean difference -0.70 kg (95% confidence interval -6.62 to 5.22) at 12 months; or dietary fat intake scores, mean difference 1.60 (85% confidence interval -2.90 to 6.10) at six months and mean difference 0.20 (95% confidence interval -4.08 to 4.48) at 12 months. There is some limited evidence to suggest that self-management education may improve knowledge in patients with cystic fibrosis but not in parents or caregivers. There is also some limited evidence to suggest that self-management education may result in positively changing a small number of behaviours in both patients and caregivers.
    The available evidence from this review is of insufficient quantity and quality to draw any firm conclusions about the effects of self-management education for cystic fibrosis. Further trials are needed to investigate the effects of self-management education on a range of clinical and behavioural outcomes in children, adolescents and adults with cystic fibrosis and their caregivers.
    Item Type
    Article
    Language
    en
    ISSN
    1469-493X
    ae974a485f413a2113503eed53cd6c53
    10.1002/14651858.CD007641.pub2
    Scopus Count
    Collections
    Cork University Hospital

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