Epilepsy in Ireland: towards the primary-tertiary care continuum.
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Authors
Varley, JarlathDelanty, Norman
Normand, Charles
Coyne, Imelda
McQuaid, Louise
Collins, Claire
Boland, Michael
Grimson, Jane
Fitzsimons, Mary
Affiliation
Epilepsy Programme, Beaumont Hospital, Dublin 9, Ireland. Jarlathvarley@beaumont.ieIssue Date
2010-01MeSH
Attitude of Health PersonnelContinuity of Patient Care
Delivery of Health Care, Integrated
Disease Management
Epilepsy
Humans
Ireland
Patient Satisfaction
Primary Health Care
Specialization
Specialties, Nursing
Treatment Outcome
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Epilepsy in Ireland: towards the primary-tertiary care continuum. 2010, 19 (1):47-52 SeizureJournal
Seizure : the journal of the British Epilepsy AssociationDOI
10.1016/j.seizure.2009.11.002PubMed ID
20006527Abstract
Epilepsy is a chronic neurological disease affecting people of every age, gender, race and socio-economic background. The diagnosis and optimal management relies on contribution from a number of healthcare disciplines in a variety of healthcare settings.To explore the interface between primary care and specialist epilepsy services in Ireland.
Using appreciative inquiry, focus groups were held with healthcare professionals (n=33) from both primary and tertiary epilepsy specialist services in Ireland.
There are significant challenges to delivering a consistent high standard of epilepsy care in Ireland. The barriers that were identified are: the stigma of epilepsy, unequal access to care services, insufficient human resources, unclear communication between primary-tertiary services and lack of knowledge. Improving the management of people with epilepsy requires reconfiguration of the primary-tertiary interface and establishing clearly defined roles and formalised clinical pathways. Such initiatives require resources in the form of further education and training and increased usage of information communication technology (ICT).
Epilepsy services across the primary-tertiary interface can be significantly enhanced through the implementation of a shared model of care underpinned by an electronic patient record (EPR) system and information communication technology (ICT). Better chronic disease management has the potential to halt the progression of epilepsy with ensuing benefits for patients and the healthcare system.
Item Type
ArticleLanguage
enISSN
1532-2688ae974a485f413a2113503eed53cd6c53
10.1016/j.seizure.2009.11.002
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