Alzheimer Society of Irelandhttp://hdl.handle.net/10147/1964512024-03-26T23:00:16Z2024-03-26T23:00:16ZA National Dementia Registry for Ireland; A Feasibility AnalysisHopper, L. Hughes, S.Irving, K. and Burke, T.http://hdl.handle.net/10147/6209842019-08-30T13:05:58Z2016-06-01T00:00:00ZA National Dementia Registry for Ireland; A Feasibility Analysis
Hopper, L. Hughes, S.Irving, K. and Burke, T.
Patient registries, it is argued, should be “central to the planning, delivery and review of health care in Ireland” (Medical Research Charities Group (MRCG) & Irish Platform for Patients' Organisations, Science and Industry (IPPOSI), 2011, p. 1). The breadth, depth and longitudinal nature of patient registry data can inform clinical and policy decision making, support comprehensive health economic assessment, and facilitate health and policy research.
Unlike other jurisdictions that have national structures that play a vital role in the development of many aspects of healthcare services, including the provision of accurate and comprehensive data on dementia to facilitate clinical and policy decision-making, there is very poor recording and coding of dementia across all care settings (Cahill, O'Shea, & Pierce, 2012). The Alzheimer Society of Ireland (ASI) commissioned this study as part of their expert evidence-based policy series. The overall aim was to generate an evidence-based discussion document addressing the feasibility of a national dementia registry for Ireland. The specific objectives were to:
• Review patient registry models in Ireland and examine their function and operation.
• Review dementia registries that exist in other jurisdictions and examine their function and operation.
• Undertake a ‘landscape analysis’ identifying the impact of relevant legal, ethical, clinical, IT systems and financial issues crucial to the development of a national dementia registry.
• Provide evidence-based policy recommendations that can progress the issue of improved recording structures for dementia in Ireland.
2016-06-01T00:00:00ZMeeting Older People's Preferences for Care; Policy but what about practice?Donnelly, S. O'Brien, M. Begley, E. and Brennan, J.http://hdl.handle.net/10147/6209762019-08-30T12:28:12Z2016-06-01T00:00:00ZMeeting Older People's Preferences for Care; Policy but what about practice?
Donnelly, S. O'Brien, M. Begley, E. and Brennan, J.
This report outlines the results of a collaborative research project undertaken by the Irish Association of Social Workers (IASW), Age Action, the Alzheimer Society of Ireland (ASI) and the School of Social Policy, Social Work and Social Justice, University College Dublin. The research gathered information on the experiences and views of social workers working across the country with older people, including people living with dementia. The purpose of the study was to investigate the health and social care system is responding to the care needs, required supports and preferences of older people. The specific objectives were to investigate:
1. Access and availability of care and support services for older people in Ireland, including those of people living with dementia.
2. Older people’s involvement in decision-making relating to care planning to meet their needs, particularly focusing on those with a cognitive impairment/dementia.
3. What community supports and services could enable older people to continue/return to live in their own home?
The research gathered the experiences of social workers working with older people across the country.
2016-06-01T00:00:00ZPractical tips for living well with dementiaDr Michelle Kelly, D.Psych, BAT, BCBA-DIrish Dementia Working Grouphttp://hdl.handle.net/10147/6050692019-08-30T13:01:18Z2014-09-01T00:00:00ZPractical tips for living well with dementia
Dr Michelle Kelly, D.Psych, BAT, BCBA-D; Irish Dementia Working Group
This factsheet is for people who have been diagnosed with Alzheimer's or another cause of dementia. People with dementia helped to write this factsheet. This factsheet contains practical tips to help people to live well day-to-day.
2014-09-01T00:00:00ZPublication list of the Alzheimer Society of IrelandAlzheimer Society of Irelandhttp://hdl.handle.net/10147/5964992019-08-30T12:40:04Z2015-01-01T00:00:00ZPublication list of the Alzheimer Society of Ireland
Alzheimer Society of Ireland
Listing of Factsheets and booklets available for people with dementia, family carers and a range of health and social care professionals
2015-01-01T00:00:00ZI have dementia...How do I plan for the futureAlzheimer Society of Irelandhttp://hdl.handle.net/10147/5964902019-08-30T13:02:07Z2014-01-01T00:00:00ZI have dementia...How do I plan for the future
Alzheimer Society of Ireland
This booklet is for people with dementia. It provides information to help you plan for the future.
2014-01-01T00:00:00ZI have dementia...First Steps after diagnosishttp://hdl.handle.net/10147/5949212019-08-20T15:57:47Z2014-01-01T00:00:00ZI have dementia...First Steps after diagnosis
This booklet is for people who have been diagnosed with Alzheimer's or another cause of dementia. People with dementia helped to write this booklet.
2014-01-01T00:00:00ZPractical tips for coping with memory lossAlzheimer Society of Irelandhttp://hdl.handle.net/10147/5928012019-08-30T13:02:09Z2011-01-01T00:00:00ZPractical tips for coping with memory loss
Alzheimer Society of Ireland
2011-01-01T00:00:00ZDon't just worry about memory loss. Do something about it.Alzheimer Society of Irelandhttp://hdl.handle.net/10147/5927892019-08-30T13:02:07Z2011-01-01T00:00:00ZDon't just worry about memory loss. Do something about it.
Alzheimer Society of Ireland
2011-01-01T00:00:00ZPractical tips for living well with dementiaThe Alzheimer Society of Irelandhttp://hdl.handle.net/10147/5840362019-08-30T12:59:13Z2014-01-01T00:00:00ZPractical tips for living well with dementia
The Alzheimer Society of Ireland
This factsheet is for people who have been diagnosed with Alzheimer's or another cause of dementia. People with dementia helped to write this factsheet.
2014-01-01T00:00:00ZExectuive summary: an economic analysis of home care services for people with dementiaTrépel, DominicCrean, MagsBegley, Emerhttp://hdl.handle.net/10147/5800062019-08-30T12:15:56Z2015-10-01T00:00:00ZExectuive summary: an economic analysis of home care services for people with dementia
Trépel, Dominic; Crean, Mags; Begley, Emer
This summary presents Trépel’s expert analysis of
home care for people with dementia in the context of currently identified needs in Ireland, focusing on who provides home care, what care is provided and when. It also provides recommendations on how home care services can be best configured to ensure an optimal arrangement of care for people with dementia.
2015-10-01T00:00:00Z