Care Alliance Irelandhttp://hdl.handle.net/10147/1405702024-03-26T22:56:06Z2024-03-26T22:56:06ZFamily carers and being a ‘hero’Care Alliance IrelandHughes, Zoehttp://hdl.handle.net/10147/6348632023-01-14T02:52:44Z2022-12-01T00:00:00ZFamily carers and being a ‘hero’
Care Alliance Ireland; Hughes, Zoe
This discussion paper is not designed to dissuade any support professional from
acknowledging the vital role of family carers in providing care to people who need it.
Neither is it designed to position carers as not wanting to be acknowledged for the
care they provide. Many family carers are happy for the work they do and the care
they provide to be acknowledged. Our hope is that this paper will stimulate debate
and discussion regarding the possible misuse or overuse of these narratives in
public discourse.
2022-12-01T00:00:00ZA review of the National Carers’ Strategy (2012): How relevant are the actions in 2021 and for the future?Pierce, MariaHughes, ZoeO'Sullivan, LiamKelleher, Carolhttp://hdl.handle.net/10147/6343292022-10-04T01:53:55Z2021-07-01T00:00:00ZA review of the National Carers’ Strategy (2012): How relevant are the actions in 2021 and for the future?
Pierce, Maria; Hughes, Zoe; O'Sullivan, Liam; Kelleher, Carol
As part of the CARERENGAGE project, Care Alliance Ireland (CAI)
and the Institute of Social Science in the 21st Century (ISS21), University College
Cork, commissioned a survey to determine the relevance of the National Carers Strategy in 2021. The aim
of the survey was to assess the extent to which the 42 actions in the NCS continue
to be relevant from the perspectives of key stakeholders, including family carers,
policymakers, relevant service providers, and researchers.
2021-07-01T00:00:00ZDefining Carers: Update June 2022Hughes, Zoehttp://hdl.handle.net/10147/6343242022-10-04T01:53:36Z2022-06-01T00:00:00ZDefining Carers: Update June 2022
Hughes, Zoe
This paper is an update to the first in this Discussion Paper Series, first published
in 2015. Given that there have been two Censuses since the original paper was
published, along with significant other research and discussion (both national and
international) into the definition of ‘family care’, we felt this paper was particularly
timely. In addition, the current work of the Joint Oireachtas Committee on Gender
Equality has a particular interest in this issue, and we hope this paper will be of
value. Of course, the experience of Covid-19 has also forced many to re-evaluate
their concept of care, of being cared for, and of how we, as a society, position that
care moving forward in the 21st century.
2022-06-01T00:00:00ZPublic and patient involvement - a guide for not-for-profit and community groups new to researchHughes, Zoehttp://hdl.handle.net/10147/6290762021-03-19T01:30:43Z2021-02-01T00:00:00ZPublic and patient involvement - a guide for not-for-profit and community groups new to research
Hughes, Zoe
For the past three years, Care Alliance Ireland has been pleased to be part of a collaborative project with the University of Limerick and other partners on the topic of Patient & Public Involvement in Health Research, funded by the Health Research Board. As part of our work on the project, we led the development of a guide for not-for-profit groups new to research, which was launched in February 2021. Topics covered are;
What is PPI?
What are the stages of research?
What can PPI contribute to your organisation?
What can your organisation contribute to research?
So your organisation has been approached by a researcher - what next?
Challenges faced by PPI researchers
Resources for organisations
Glossary of PPI terms
2021-02-01T00:00:00ZCare Alliance Ireland position paper on vaccine prioritisation for family carersHughes, Zoehttp://hdl.handle.net/10147/6290752021-03-19T01:30:49Z2021-03-01T00:00:00ZCare Alliance Ireland position paper on vaccine prioritisation for family carers
Hughes, Zoe
The purpose of this Position Paper is to outline the Care Alliance Ireland position on vaccine prioritisation for family carers in Ireland, with specific reference to the concepts of ‘rationale’ and ‘ethical principles’ which accompany the Government’s vaccination priority guidelines.
2021-03-01T00:00:00ZCovid-19 and the Impact on Family Carers: A Review of Recent ResearchCare Alliance Irelandhttp://hdl.handle.net/10147/6283102020-09-19T04:30:13Z2020-09-01T00:00:00ZCovid-19 and the Impact on Family Carers: A Review of Recent Research
Care Alliance Ireland
The purpose of this document is to provide an overview of the impact of Covid-19 on Ireland’s 391,000 family carers. This paper will examine key rapid surveys and research studies which have been conducted by various researchers and organisations both in a specifically Irish context and internationally. This should not be seen as an exhaustive examination but as a useful overview – we recommend consulting the original research publications for full details. Links are provided where available to direct readers to the full texts.
2020-09-01T00:00:00ZEstimates for Numbers of Family Carers in IrelandCare Alliance Irelandhttp://hdl.handle.net/10147/6270452020-01-17T02:03:04Z2019-10-01T00:00:00ZEstimates for Numbers of Family Carers in Ireland
Care Alliance Ireland
Since 2002, thanks to extensive lobbying and representation by the family carers
movement, there has been a formal state-endorsed approach to quantifying the
number of individuals in the Republic of Ireland who are providing unpaid care to
a relative or friend. Initially, the Census of Population provided this data every five
years. More recently a number of other large-scale surveys have been undertaken
in an attempt to capture the prevalence of family caring in Ireland. This document
seeks to summarise this new data and draws on the population data published by
the Central Statistics Office in August 2019.
2019-10-01T00:00:00ZOnline Resources: What Family Carers ThinkHughes, Zoehttp://hdl.handle.net/10147/6247332019-08-30T12:59:32Z2019-06-10T00:00:00ZOnline Resources: What Family Carers Think
Hughes, Zoe
In order to discover how family carers in Ireland are using – and could be using – online services and supports, Care Alliance Ireland (in consultation with the National Carers Week partner organisations) undertook a survey of Irish family carers in April 2019. 300 family carers responded online, and a summary of their responses are included here.
2019-06-10T00:00:00ZRural carers in Ireland: challenges & opportunitiesHughes, ZoeCare Alliancehttp://hdl.handle.net/10147/6239242019-08-30T13:07:10Z2018-11-01T00:00:00ZRural carers in Ireland: challenges & opportunities
Hughes, Zoe; Care Alliance
Traditionally, the majority of the population of Ireland have lived in rural areas outside of large towns and cities. However, this has changed over time, and in 2016 just over 37% of the population lived in an ‘aggregate rural area’ – which is an area of less than 1,500 inhabitants. The percentage of family carers living in these same rural aggregate areas is higher, at almost 42%. Specific challenges face family carers living in rural or sparsely inhabited areas. While there are family carer support organisations across the country, operating and providing supports nationwide, not all of the challenges facing family carers can be addressed by support organisations alone. This paper outlines some of these key issues, investigates some of the international research and responses to rural family carer challenges, and sets out some additional responses which are necessary in an Irish context.
2018-11-01T00:00:00ZFamily Caring and Minority PopulationsHughes, Zoehttp://hdl.handle.net/10147/6237942019-08-30T12:42:00Z2018-09-01T00:00:00ZFamily Caring and Minority Populations
Hughes, Zoe
There are up to 360,000 family carers caring for friends and family members in Ireland with a particularly high concentration among women in their 40s and 50s . Across the country, organisations supporting and advocating for family carers are naturally focussed on providing the best supports for the greatest number of family carers. However, the risk is that such an approach will be less successful in addressing the specific needs of minority group carers such as members of the Travelling Community, ethnic and religious minorities and members of the lesbian, gay, bisexual, transgender and/or queer (LGBTQ) community.
The aim of this paper is to introduce some of the particular issues which family carers who are members of minority populations face. To date, very little work has been undertaken within these specific groups in an Irish context, and although more work has been undertaken in the UK and US, our knowledge of these issues remains low. We know that disability and illness, and consequently family caring, are cross-cutting issues which effect individuals across age, race, gender, sexuality and religion. There is evidence (discussed below) that certain groups are more likely to experience certain conditions that require care (for example mental health difficulties etc.) – and there is also evidence that certain groups experience proportionally much higher levels of disability and care, even if the actual numbers remain low in comparison to non-minority populations
2018-09-01T00:00:00Z