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Living with relapsed myeloma: Symptoms and self-care strategies.
Cormican, Orlaith Dowling, Maura
Cormican, Orlaith
Dowling, Maura
Authors
Advisors
Editors
Other Contributors
Departments
Date
2018-04-01
Date Submitted
Keywords
carers
focus groups
patients
qualitative
relapsed
symptoms
MYELOMA
SELF CARE
SYMPTOMS
QUALITY OF LIFE
focus groups
patients
qualitative
relapsed
symptoms
MYELOMA
SELF CARE
SYMPTOMS
QUALITY OF LIFE
Other Subjects
Subject Mesh
Planned Date
Start Date
Collaborators
Principal Investigators
Files
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JOCN-27-1713.pdf
Adobe PDF, 619.24 KB
Alternative Titles
Publisher
Abstract
Aims and Objectives
To explore which symptoms relapsed myeloma patients experience and what self‐care strategies are used.
Methods
This was a qualitative study utilising focus group interviews (n = 4) with relapsed myeloma patients (n = 15) and carers (n = 9). The focus groups were analysed and guided by thematic analysis.
Results
Three major themes with subthemes were identified following analysis of the interview data: “difficult symptoms; “self‐care” and “feeling vulnerable.” These findings indicate the challenges relapsed myeloma patients experience with ongoing symptoms and highlight the importance of continuity of care.
Conclusions
Symptom management for myeloma patients remains complex due to the array of treatments given. These patients require holistic care and thorough regular assessments to help them cope with the adverse effects on their physical and psychological health. For patients with a long‐term diagnosis of myeloma, self‐management workshops and regular education sessions may be of benefit.
Language
en
Citation
ISSN
1365-2702
eISSN
ISBN
DOI
10.1111/jocn.14232
PMID
29266501