The Data Protection Acts 1988 and 2003 some implications for public health and medical research

Hdl Handle:
http://hdl.handle.net/10147/620843
Title:
The Data Protection Acts 1988 and 2003 some implications for public health and medical research
Authors:
Sheikh, Asim A.
Affiliation:
UCD School of Medicine and Medical Sciences
Publisher:
Health Research Board
Issue Date:
2008
URI:
http://hdl.handle.net/10147/620843
Additional Links:
http://www.hrb.ie
Item Type:
Report
Language:
en
Description:
This discussion document examines some of the legal and practice ramifications of the Data Protection Acts 1988 and 2003 for public health and medical research. The paper was commissioned by the Health Research Board (HRB) subsequent to the expression of general concerns in relation to how the Data Protection Acts would apply to public health and medical research. Many have expressed the concern that a zealously over-regulated and bureaucratic regime would hamper medical research for the wrong reasons. These concerns have been expressed by a number of people in various jurisdictions. Running in a parallel to these particular concerns has been the law, which has developed a rich corpus of reasoning aimed at ensuring that individual autonomy is protected from violation except where an overriding ‘public interest’ exception requires it. It is only very recently that this parallel is merging and that the call for recognition, by those involved in research and policy makers, of a ‘public interest’ exception in medical research has begun to be made. The well-considered merging of the ideas of protection of individuals and proper permissibility in medical research will ensure that medical research will flourish in an atmosphere of trust and thorough but comfortable governance.
Keywords:
RESEARCH; HEALTH RESEARCH; DATA PROTECTION

Full metadata record

DC FieldValue Language
dc.contributor.authorSheikh, Asim A.en
dc.date.accessioned2016-10-04T13:02:57Z-
dc.date.available2016-10-04T13:02:57Z-
dc.date.issued2008-
dc.identifier.urihttp://hdl.handle.net/10147/620843-
dc.descriptionThis discussion document examines some of the legal and practice ramifications of the Data Protection Acts 1988 and 2003 for public health and medical research. The paper was commissioned by the Health Research Board (HRB) subsequent to the expression of general concerns in relation to how the Data Protection Acts would apply to public health and medical research. Many have expressed the concern that a zealously over-regulated and bureaucratic regime would hamper medical research for the wrong reasons. These concerns have been expressed by a number of people in various jurisdictions. Running in a parallel to these particular concerns has been the law, which has developed a rich corpus of reasoning aimed at ensuring that individual autonomy is protected from violation except where an overriding ‘public interest’ exception requires it. It is only very recently that this parallel is merging and that the call for recognition, by those involved in research and policy makers, of a ‘public interest’ exception in medical research has begun to be made. The well-considered merging of the ideas of protection of individuals and proper permissibility in medical research will ensure that medical research will flourish in an atmosphere of trust and thorough but comfortable governance.en
dc.language.isoenen
dc.publisherHealth Research Boarden
dc.relation.urlhttp://www.hrb.ieen
dc.subjectRESEARCHen
dc.subjectHEALTH RESEARCHen
dc.subjectDATA PROTECTIONen
dc.titleThe Data Protection Acts 1988 and 2003 some implications for public health and medical researchen
dc.typeReporten
dc.contributor.departmentUCD School of Medicine and Medical Sciencesen
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