Interviews with Irish healthcare workers from different disciplines about palliative care for people with Parkinson’s disease: a definite role but uncertainty around terminology and timing

Hdl Handle:
http://hdl.handle.net/10147/596560
Title:
Interviews with Irish healthcare workers from different disciplines about palliative care for people with Parkinson’s disease: a definite role but uncertainty around terminology and timing
Authors:
Fox, Siobhan; Cashell, Alison; Kernohan, W. G; Lynch, Marie; McGlade, Ciara; O’Brien, Tony; O’Sullivan, Sean S; Timmons, Suzanne
Citation:
BMC Palliative Care. 2016 Feb 09;15(1):15
Issue Date:
9-Feb-2016
URI:
http://dx.doi.org/10.1186/s12904-016-0087-6; http://hdl.handle.net/10147/596560
Abstract:
Abstract Background An integrated palliative care approach is recommended in all life-limiting diseases, including Parkinson’s disease (PD). However research shows that people with PD have unmet palliative care needs. The study aimed to explore multidisciplinary healthcare workers’ (HCWs) views on palliative care for people with PD, identifying perceived barriers and facilitators. Methods A qualitative design was used; data was analysed using Thematic Analysis. Semi-structured interviews were conducted with 30 HCWs, working either with people with PD or in a palliative care setting in Ireland. Results A number of perceived barriers were evident helping to account for the previously reported unmet palliative care needs in PD. A lack of education about PD and palliative care meant that HCWs were unsure of the appropriateness of referral, and patients and carers weren’t equipped with information to seek palliative care. A lack of communication between PD and palliative care specialists was seen to impede collaboration between the disciplines. Uncertainty about the timing of palliative care meant that it was often not introduced until a crisis point, despite the recognised need for early planning due to increased prevalence of dementia. Conclusions Most HCWs recognised a need for palliative care for people with PD; however several barriers to implementing a palliative care approach in this population need to be addressed. Implications for clinical practice and policy include the need for an integrated model of care, and education for all HCWs, patients, carers, and the public on both the nature of advanced PD, and the potential of palliative care in support of patients and their family members.
Language:
en
Keywords:
PALLIATIVE CARE; PARKINSON'S DISEASE

Full metadata record

DC FieldValue Language
dc.contributor.authorFox, Siobhanen
dc.contributor.authorCashell, Alisonen
dc.contributor.authorKernohan, W. Gen
dc.contributor.authorLynch, Marieen
dc.contributor.authorMcGlade, Ciaraen
dc.contributor.authorO’Brien, Tonyen
dc.contributor.authorO’Sullivan, Sean Sen
dc.contributor.authorTimmons, Suzanneen
dc.date.accessioned2016-02-17T16:37:56Zen
dc.date.available2016-02-17T16:37:56Zen
dc.date.issued2016-02-09en
dc.identifier.citationBMC Palliative Care. 2016 Feb 09;15(1):15en
dc.identifier.urihttp://dx.doi.org/10.1186/s12904-016-0087-6en
dc.identifier.urihttp://hdl.handle.net/10147/596560en
dc.description.abstractAbstract Background An integrated palliative care approach is recommended in all life-limiting diseases, including Parkinson’s disease (PD). However research shows that people with PD have unmet palliative care needs. The study aimed to explore multidisciplinary healthcare workers’ (HCWs) views on palliative care for people with PD, identifying perceived barriers and facilitators. Methods A qualitative design was used; data was analysed using Thematic Analysis. Semi-structured interviews were conducted with 30 HCWs, working either with people with PD or in a palliative care setting in Ireland. Results A number of perceived barriers were evident helping to account for the previously reported unmet palliative care needs in PD. A lack of education about PD and palliative care meant that HCWs were unsure of the appropriateness of referral, and patients and carers weren’t equipped with information to seek palliative care. A lack of communication between PD and palliative care specialists was seen to impede collaboration between the disciplines. Uncertainty about the timing of palliative care meant that it was often not introduced until a crisis point, despite the recognised need for early planning due to increased prevalence of dementia. Conclusions Most HCWs recognised a need for palliative care for people with PD; however several barriers to implementing a palliative care approach in this population need to be addressed. Implications for clinical practice and policy include the need for an integrated model of care, and education for all HCWs, patients, carers, and the public on both the nature of advanced PD, and the potential of palliative care in support of patients and their family members.en
dc.language.isoenen
dc.subjectPALLIATIVE CAREen
dc.subjectPARKINSON'S DISEASEen
dc.titleInterviews with Irish healthcare workers from different disciplines about palliative care for people with Parkinson’s disease: a definite role but uncertainty around terminology and timingen
dc.language.rfc3066enen
dc.rights.holderFox et al.en
dc.date.updated2016-02-09T17:04:02Zen
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