Advancing years, Different challenges:Wave 2 IDS-TILDA: findings on the ageing of people with an intellectual disability: an intellectual disability supplement to the Irish Longitudinal Study on Ageing

Hdl Handle:
http://hdl.handle.net/10147/333034
Title:
Advancing years, Different challenges:Wave 2 IDS-TILDA: findings on the ageing of people with an intellectual disability: an intellectual disability supplement to the Irish Longitudinal Study on Ageing
Authors:
McCarron, Mary; McCallion, Philip; Carroll, Rachael; Burke, Eilish; Cleary, Eimear; McCausland, Darren; McGlinchy, Eimear; O’Donovan, May-Ann; Mulryan, Niamh; Shivers, Carolyn
Citation:
McCarron, M. et al. Advancing years, Different challenges:Wave 2 IDS-TILDA: findings on the ageing of people with an intellectual disability: an intellectual disability supplement to the Irish Longitudinal Study on Ageing, 2014. Dublin: Trinity College Dublin.
Publisher:
School of Nursing and Midwifery, Trinity College Dublin.
Issue Date:
Oct-2014
URI:
http://hdl.handle.net/10147/333034
Item Type:
Report
Language:
en
Description:
1 The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS- TILDA) is a large-scale, nationally representative study of people aged 40 years and over with an intellectual disability (ID) in Ireland. It is the most comprehensive study on ageing in persons with intellectual disability ever carried out in Ireland, and the first of its kind internationally, to be conducted in tandem with a national population study on ageing. IDS-TILDA will provide much needed data on the health, social, economic and environmental circumstances of 753 people as they grow older and on how their circumstances change over time. At Wave 1, the National Intellectual Disability Database (NIDD) provided the sampling frame for the study and a nationally representative group of 753 respondents with an ID over the age of 40 years were successfully enrolled in the study. At Wave 2, all living Wave 1 respondents were invited to complete a pre- interview questionnaire (PIQ) and also undertake an extensive face-to-face computer assisted personal interview (CAPI). The overall response rate to Wave 2 of the study was 94%. Of those not participating 34 had died. Two new data collection elements were added to Wave 2 consisting of a health assessment and an end of life (EoL) interview conducted with carers of Wave 1 participants who had died. Strategic harmonisation of questions with The Irish Longitudinal Study on Ageing have ensured that there are opportunities to compare the experiences of people with ID with experiences of the general population as they too age.
Keywords:
AGEING; PEOPLE WITH LEARNING DISABILITY
Local subject classification:
INTELLECTUAL DISABILITIES
ISSN:
978-1-907894-05-3

Full metadata record

DC FieldValue Language
dc.contributor.authorMcCarron, Maryen_GB
dc.contributor.authorMcCallion, Philipen_GB
dc.contributor.authorCarroll, Rachaelen_GB
dc.contributor.authorBurke, Eilishen_GB
dc.contributor.authorCleary, Eimearen_GB
dc.contributor.authorMcCausland, Darrenen_GB
dc.contributor.authorMcGlinchy, Eimearen_GB
dc.contributor.authorO’Donovan, May-Annen_GB
dc.contributor.authorMulryan, Niamhen_GB
dc.contributor.authorShivers, Carolynen_GB
dc.date.accessioned2014-10-21T15:10:57Z-
dc.date.available2014-10-21T15:10:57Z-
dc.date.issued2014-10-
dc.identifier.citationMcCarron, M. et al. Advancing years, Different challenges:Wave 2 IDS-TILDA: findings on the ageing of people with an intellectual disability: an intellectual disability supplement to the Irish Longitudinal Study on Ageing, 2014. Dublin: Trinity College Dublin.en_GB
dc.identifier.issn978-1-907894-05-3-
dc.identifier.urihttp://hdl.handle.net/10147/333034-
dc.description1 The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS- TILDA) is a large-scale, nationally representative study of people aged 40 years and over with an intellectual disability (ID) in Ireland. It is the most comprehensive study on ageing in persons with intellectual disability ever carried out in Ireland, and the first of its kind internationally, to be conducted in tandem with a national population study on ageing. IDS-TILDA will provide much needed data on the health, social, economic and environmental circumstances of 753 people as they grow older and on how their circumstances change over time. At Wave 1, the National Intellectual Disability Database (NIDD) provided the sampling frame for the study and a nationally representative group of 753 respondents with an ID over the age of 40 years were successfully enrolled in the study. At Wave 2, all living Wave 1 respondents were invited to complete a pre- interview questionnaire (PIQ) and also undertake an extensive face-to-face computer assisted personal interview (CAPI). The overall response rate to Wave 2 of the study was 94%. Of those not participating 34 had died. Two new data collection elements were added to Wave 2 consisting of a health assessment and an end of life (EoL) interview conducted with carers of Wave 1 participants who had died. Strategic harmonisation of questions with The Irish Longitudinal Study on Ageing have ensured that there are opportunities to compare the experiences of people with ID with experiences of the general population as they too age.en_GB
dc.language.isoenen
dc.publisherSchool of Nursing and Midwifery, Trinity College Dublin.en_GB
dc.subjectAGEINGen_GB
dc.subjectPEOPLE WITH LEARNING DISABILITYen_GB
dc.subject.otherINTELLECTUAL DISABILITIESen_GB
dc.titleAdvancing years, Different challenges:Wave 2 IDS-TILDA: findings on the ageing of people with an intellectual disability: an intellectual disability supplement to the Irish Longitudinal Study on Ageingen_GB
dc.typeReporten
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