The experiences of palliative care health service provision for people with non-malignant respiratory disease and their caregivers: an all-Ireland study.

Hdl Handle:
http://hdl.handle.net/10147/331947
Title:
The experiences of palliative care health service provision for people with non-malignant respiratory disease and their caregivers: an all-Ireland study.
Authors:
Larkin, P
Affiliation:
School of Nursing, Midwifery & Health Systems, UCD Health Sciences Centre & Our Lady's Hospice & Care Services
Citation:
The experiences of palliative care health service provision for people with non-malignant respiratory disease and their caregivers: an all-Ireland study. 2014, 70 (3):687-97 J Adv Nurs
Publisher:
John Wiley & Sons, Ltd
Journal:
Journal of advanced nursing
Issue Date:
Mar-2014
URI:
http://hdl.handle.net/10147/331947
DOI:
10.1111/jan.12240
PubMed ID:
23991762
Abstract:
To explore the perception of palliative care provision for people with non-malignant respiratory disease from the perspective of bereaved caregivers.; It is recognized that the majority of patients diagnosed with a malignant disease will have access to palliative care provision. However, it is less clear if the same standards of palliative care are available to those with non-malignant respiratory disease in Northern Ireland and the Republic of Ireland.; A qualitative study based on broad interpretivism.; This research is a PhD study funded by the Department of Education and Learning in Northern Ireland (awarded February 2011). Data collection will consist of two stages; interviews with 20 bereaved caregivers of people who have died 3-18 months previously with a diagnosis of non-malignant respiratory disease and four focus groups with healthcare professionals involved in the care of this client group. This study will be carried out at four healthcare sites across the Island of Ireland. The data will be analysed using thematic content analysis. Research Ethics committee approval was obtained (March 2012).; This research will explore the experiences of patients with Chronic Obstructive Pulmonary Disease, Interstitial Lung Disease and Bronchiectasis and their caregivers from the perspective of the bereaved caregiver. The outcomes of this study will provide a critical first step in the development of more responsive palliative care for this client group and have important implications for future practice and policy in the palliative care provided to this client group.
Item Type:
Article
Language:
en
Keywords:
PALLIATIVE CARE; RESPIRATORY DISORDER
MeSH:
Caregivers; Humans; Ireland; Northern Ireland; Palliative Care; Reproducibility of Results; Respiratory Tract Diseases
ISSN:
1365-2648

Full metadata record

DC FieldValue Language
dc.contributor.authorLarkin, Pen_GB
dc.date.accessioned2014-09-29T15:23:41Z-
dc.date.available2014-09-29T15:23:41Z-
dc.date.issued2014-03-
dc.identifier.citationThe experiences of palliative care health service provision for people with non-malignant respiratory disease and their caregivers: an all-Ireland study. 2014, 70 (3):687-97 J Adv Nursen_GB
dc.identifier.issn1365-2648-
dc.identifier.pmid23991762-
dc.identifier.doi10.1111/jan.12240-
dc.identifier.urihttp://hdl.handle.net/10147/331947-
dc.description.abstractTo explore the perception of palliative care provision for people with non-malignant respiratory disease from the perspective of bereaved caregivers.-
dc.description.abstractIt is recognized that the majority of patients diagnosed with a malignant disease will have access to palliative care provision. However, it is less clear if the same standards of palliative care are available to those with non-malignant respiratory disease in Northern Ireland and the Republic of Ireland.-
dc.description.abstractA qualitative study based on broad interpretivism.-
dc.description.abstractThis research is a PhD study funded by the Department of Education and Learning in Northern Ireland (awarded February 2011). Data collection will consist of two stages; interviews with 20 bereaved caregivers of people who have died 3-18 months previously with a diagnosis of non-malignant respiratory disease and four focus groups with healthcare professionals involved in the care of this client group. This study will be carried out at four healthcare sites across the Island of Ireland. The data will be analysed using thematic content analysis. Research Ethics committee approval was obtained (March 2012).-
dc.description.abstractThis research will explore the experiences of patients with Chronic Obstructive Pulmonary Disease, Interstitial Lung Disease and Bronchiectasis and their caregivers from the perspective of the bereaved caregiver. The outcomes of this study will provide a critical first step in the development of more responsive palliative care for this client group and have important implications for future practice and policy in the palliative care provided to this client group.-
dc.language.isoenen
dc.publisherJohn Wiley & Sons, Ltden_GB
dc.rightsArchived with thanks to Journal of advanced nursingen_GB
dc.subjectPALLIATIVE CAREen_GB
dc.subjectRESPIRATORY DISORDERen_GB
dc.subject.meshCaregivers-
dc.subject.meshHumans-
dc.subject.meshIreland-
dc.subject.meshNorthern Ireland-
dc.subject.meshPalliative Care-
dc.subject.meshReproducibility of Results-
dc.subject.meshRespiratory Tract Diseases-
dc.titleThe experiences of palliative care health service provision for people with non-malignant respiratory disease and their caregivers: an all-Ireland study.en_GB
dc.typeArticleen
dc.contributor.departmentSchool of Nursing, Midwifery & Health Systems, UCD Health Sciences Centre & Our Lady's Hospice & Care Servicesen_GB
dc.identifier.journalJournal of advanced nursingen_GB

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