White paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the European Association for Palliative Care.

Hdl Handle:
http://hdl.handle.net/10147/325590
Title:
White paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the European Association for Palliative Care.
Authors:
van der Steen JT; Radbruch L; Hertogh CM; de Boer ME; Hughes JC; Larkin P; Francke AL; Junger S; European Associstion for Palliative Care (EAPC)
Affiliation:
Our Lady's Hospice & Care Services
Citation:
van der Steen JT et al. White paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the European Association for Palliative Care. Palliative Medicine. 2014 28(3):197-209
Publisher:
Sage Publications
Journal:
Palliative medicine
Issue Date:
Mar-2014
URI:
http://hdl.handle.net/10147/325590
DOI:
10.1177/0269216313493685
PubMed ID:
23828874
Abstract:
Dementia is a life-limiting disease without curative treatments. Patients and families may need palliative care specific to dementia.; To define optimal palliative care in dementia.; Five-round Delphi study. Based on literature, a core group of 12 experts from 6 countries drafted a set of core domains with salient recommendations for each domain. We invited 89 experts from 27 countries to evaluate these in a two-round online survey with feedback. Consensus was determined according to predefined criteria. The fourth round involved decisions by the core team, and the fifth involved input from the European Association for Palliative Care.; A total of 64 (72%) experts from 23 countries evaluated a set of 11 domains and 57 recommendations. There was immediate and full consensus on the following eight domains, including the recommendations: person-centred care, communication and shared decision-making; optimal treatment of symptoms and providing comfort (these two identified as central to care and research); setting care goals and advance planning; continuity of care; psychosocial and spiritual support; family care and involvement; education of the health care team; and societal and ethical issues. After revision, full consensus was additionally reached for prognostication and timely recognition of dying. Recommendations on nutrition and dehydration (avoiding overly aggressive, burdensome or futile treatment) and on dementia stages in relation to care goals (applicability of palliative care) achieved moderate consensus.; We have provided the first definition of palliative care in dementia based on evidence and consensus, a framework to provide guidance for clinical practice, policy and research.
Item Type:
Article In Press
Language:
en
Keywords:
PALLIATIVE CARE; DEMENTIA
Local subject classification:
END-OF-LIFE CARE
ISSN:
1477-030X

Full metadata record

DC FieldValue Language
dc.contributor.authorvan der Steen JTen_GB
dc.contributor.authorRadbruch Len_GB
dc.contributor.authorHertogh CMen_GB
dc.contributor.authorde Boer MEen_GB
dc.contributor.authorHughes JCen_GB
dc.contributor.authorLarkin Pen_GB
dc.contributor.authorFrancke ALen_GB
dc.contributor.authorJunger Sen_GB
dc.contributor.authorEuropean Associstion for Palliative Care (EAPC)en_GB
dc.date.accessioned2014-09-01T13:39:11Z-
dc.date.available2014-09-01T13:39:11Z-
dc.date.issued2014-03-
dc.identifier.citationvan der Steen JT et al. White paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the European Association for Palliative Care. Palliative Medicine. 2014 28(3):197-209en_GB
dc.identifier.issn1477-030X-
dc.identifier.pmid23828874-
dc.identifier.doi10.1177/0269216313493685-
dc.identifier.urihttp://hdl.handle.net/10147/325590-
dc.description.abstractDementia is a life-limiting disease without curative treatments. Patients and families may need palliative care specific to dementia.-
dc.description.abstractTo define optimal palliative care in dementia.-
dc.description.abstractFive-round Delphi study. Based on literature, a core group of 12 experts from 6 countries drafted a set of core domains with salient recommendations for each domain. We invited 89 experts from 27 countries to evaluate these in a two-round online survey with feedback. Consensus was determined according to predefined criteria. The fourth round involved decisions by the core team, and the fifth involved input from the European Association for Palliative Care.-
dc.description.abstractA total of 64 (72%) experts from 23 countries evaluated a set of 11 domains and 57 recommendations. There was immediate and full consensus on the following eight domains, including the recommendations: person-centred care, communication and shared decision-making; optimal treatment of symptoms and providing comfort (these two identified as central to care and research); setting care goals and advance planning; continuity of care; psychosocial and spiritual support; family care and involvement; education of the health care team; and societal and ethical issues. After revision, full consensus was additionally reached for prognostication and timely recognition of dying. Recommendations on nutrition and dehydration (avoiding overly aggressive, burdensome or futile treatment) and on dementia stages in relation to care goals (applicability of palliative care) achieved moderate consensus.-
dc.description.abstractWe have provided the first definition of palliative care in dementia based on evidence and consensus, a framework to provide guidance for clinical practice, policy and research.-
dc.language.isoenen
dc.publisherSage Publicationsen_GB
dc.rightsArchived with thanks to Palliative medicineen_GB
dc.subjectPALLIATIVE CAREen_GB
dc.subjectDEMENTIAen_GB
dc.subject.otherEND-OF-LIFE CAREen_GB
dc.titleWhite paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the European Association for Palliative Care.en_GB
dc.typeArticle In Pressen
dc.contributor.departmentOur Lady's Hospice & Care Servicesen_GB
dc.identifier.journalPalliative medicineen_GB

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