Respite services for children with life-limiting conditions and their families in Ireland: A national needs assessment

Hdl Handle:
http://hdl.handle.net/10147/310918
Title:
Respite services for children with life-limiting conditions and their families in Ireland: A national needs assessment
Authors:
Irish Hospice Foundation; LauraLynn
Publisher:
Irish Hospice Foundation
Issue Date:
2013
URI:
http://hdl.handle.net/10147/310918
Item Type:
Report
Language:
en
Description:
The diagnosis of a life-limiting condition in a child is an immense challenge for a family. Although caring for a child with a life-limiting condition can be physically and emotionally demanding, most parents wish to care for their child at home. Regular respite provides valuable support to families on their care journey, and the availability of the appropriate range of respite services can assist families in making the best decision regarding the location of care for their child. In 2010 the Department of Health and Children published Palliative Care for Children with Lifelimiting Conditions in Ireland – a National Policy (DoHC, 2010). This policy provides the foundation for the development of paediatric palliative care services in Ireland. The significance of respite care as a component of children’s palliative care is reflected in the policy document, which recommended that: • a range of respite services should be developed for children with life-limiting conditions and palliative care needs • inpatient hospice beds specifically for respite should be developed as part of the children’s palliative care service. • each administrative area of the Health Service Executive (HSE) should plan and develop respite facilities for children with life-limiting conditions and their families. One of the priorities identified in the national policy was an audit of the need for respite services for children with life-limiting conditions and their families. In response, and to assist with the implementation of the policy, the Irish Hospice Foundation and LauraLynn, Ireland’s Children’s Hospice, in partnership with the HSE, undertook a national needs assessment in late 2012 to identify existing services and to assess current and future need. The findings are presented in this report.
Keywords:
PALLIATIVE CARE; CHILD
Local subject classification:
RESPITE CARE

Full metadata record

DC FieldValue Language
dc.contributor.authorIrish Hospice Foundationen_GB
dc.contributor.authorLauraLynnen_GB
dc.date.accessioned2014-01-06T15:59:44Z-
dc.date.available2014-01-06T15:59:44Z-
dc.date.issued2013-
dc.identifier.urihttp://hdl.handle.net/10147/310918-
dc.descriptionThe diagnosis of a life-limiting condition in a child is an immense challenge for a family. Although caring for a child with a life-limiting condition can be physically and emotionally demanding, most parents wish to care for their child at home. Regular respite provides valuable support to families on their care journey, and the availability of the appropriate range of respite services can assist families in making the best decision regarding the location of care for their child. In 2010 the Department of Health and Children published Palliative Care for Children with Lifelimiting Conditions in Ireland – a National Policy (DoHC, 2010). This policy provides the foundation for the development of paediatric palliative care services in Ireland. The significance of respite care as a component of children’s palliative care is reflected in the policy document, which recommended that: • a range of respite services should be developed for children with life-limiting conditions and palliative care needs • inpatient hospice beds specifically for respite should be developed as part of the children’s palliative care service. • each administrative area of the Health Service Executive (HSE) should plan and develop respite facilities for children with life-limiting conditions and their families. One of the priorities identified in the national policy was an audit of the need for respite services for children with life-limiting conditions and their families. In response, and to assist with the implementation of the policy, the Irish Hospice Foundation and LauraLynn, Ireland’s Children’s Hospice, in partnership with the HSE, undertook a national needs assessment in late 2012 to identify existing services and to assess current and future need. The findings are presented in this report.en_GB
dc.language.isoenen
dc.publisherIrish Hospice Foundationen_GB
dc.subjectPALLIATIVE CAREen_GB
dc.subjectCHILDen_GB
dc.subject.otherRESPITE CAREen_GB
dc.titleRespite services for children with life-limiting conditions and their families in Ireland: A national needs assessmenten_GB
dc.typeReporten
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