Paediatric palliative care: development and pilot study of a 'directory' of life-limiting conditions

Hdl Handle:
http://hdl.handle.net/10147/306899
Title:
Paediatric palliative care: development and pilot study of a 'directory' of life-limiting conditions
Authors:
Hain, Richard; Devins, Mary; Hastings, Richard; Noyes, Jayne
Citation:
BMC Palliative Care. 2013 Dec 11;12(1):43
Journal:
BMC palliative care
Issue Date:
11-Dec-2013
URI:
http://dx.doi.org/10.1186/1472-684X-12-43; http://hdl.handle.net/10147/306899
Abstract:
Abstract Background Children’s palliative care services are developing. Rational service development requires sound epidemiological data that are difficult to obtain owing to ambiguity in the definitions both of the population who needs palliative care and of palliative care itself. Existing definitions are of trajectory archetypes. The aim of this study was to develop and pilot a directory of the commonest specific diagnoses that map on to those archetypes. Methods The diagnoses of patients under the care of five children hospices and a tertiary specialist palliative medicine service in the UK were recorded. Duplicates and diagnoses that were not life-limiting conditions according to the ACT/RCPCH criteria or were not primary were removed. The resulting Directory of life-limiting conditions was piloted by analysing Death Certificate data of children in Wales between 2002 and 2007. Results 1590 diagnoses from children’s hospices and 105 from specialist palliative medicine were combined. After removals there were 376 diagnostic label. All ICD10 chapter headings were represented by at least one condition. The pilot study showed that 569 (54%) deaths in Wales were caused by LLC. Only four LLC resulted in ten or more deaths. Among deaths from LLC, the ten commonest diagnoses accounted for 32%, while the 136 diagnoses that caused one or two deaths accounted for 25%. The majority occurred from a small number of life-limiting conditions. Conclusion The Directory is a practical tool for identifying most life-limiting conditions using ICD10 codes that facilitates extraction and analysis of data from existing sources in respect of life-limiting conditions in children such as death certificate data, offering the potential for rapid and precise studies in paediatric palliative care.
Language:
en
Keywords:
PALLIATIVE CARE; CHILD

Full metadata record

DC FieldValue Language
dc.contributor.authorHain, Richarden_GB
dc.contributor.authorDevins, Maryen_GB
dc.contributor.authorHastings, Richarden_GB
dc.contributor.authorNoyes, Jayneen_GB
dc.date.accessioned2013-12-16T16:36:00Z-
dc.date.available2013-12-16T16:36:00Z-
dc.date.issued2013-12-11-
dc.identifier.citationBMC Palliative Care. 2013 Dec 11;12(1):43en_GB
dc.identifier.urihttp://dx.doi.org/10.1186/1472-684X-12-43-
dc.identifier.urihttp://hdl.handle.net/10147/306899-
dc.description.abstractAbstract Background Children’s palliative care services are developing. Rational service development requires sound epidemiological data that are difficult to obtain owing to ambiguity in the definitions both of the population who needs palliative care and of palliative care itself. Existing definitions are of trajectory archetypes. The aim of this study was to develop and pilot a directory of the commonest specific diagnoses that map on to those archetypes. Methods The diagnoses of patients under the care of five children hospices and a tertiary specialist palliative medicine service in the UK were recorded. Duplicates and diagnoses that were not life-limiting conditions according to the ACT/RCPCH criteria or were not primary were removed. The resulting Directory of life-limiting conditions was piloted by analysing Death Certificate data of children in Wales between 2002 and 2007. Results 1590 diagnoses from children’s hospices and 105 from specialist palliative medicine were combined. After removals there were 376 diagnostic label. All ICD10 chapter headings were represented by at least one condition. The pilot study showed that 569 (54%) deaths in Wales were caused by LLC. Only four LLC resulted in ten or more deaths. Among deaths from LLC, the ten commonest diagnoses accounted for 32%, while the 136 diagnoses that caused one or two deaths accounted for 25%. The majority occurred from a small number of life-limiting conditions. Conclusion The Directory is a practical tool for identifying most life-limiting conditions using ICD10 codes that facilitates extraction and analysis of data from existing sources in respect of life-limiting conditions in children such as death certificate data, offering the potential for rapid and precise studies in paediatric palliative care.-
dc.language.isoenen
dc.subjectPALLIATIVE CAREen_GB
dc.subjectCHILDen_GB
dc.titlePaediatric palliative care: development and pilot study of a 'directory' of life-limiting conditionsen_GB
dc.identifier.journalBMC palliative careen_GB
dc.language.rfc3066en-
dc.rights.holderRichard Hain et al.; licensee BioMed Central Ltd.-
dc.description.statusPeer Reviewed-
dc.date.updated2013-12-16T16:14:56Z-
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