An exploration of the experience, confidence and attitudes of staff to the provision of palliative care to people with intellectual disabilities.

2.50
Hdl Handle:
http://hdl.handle.net/10147/221208
Title:
An exploration of the experience, confidence and attitudes of staff to the provision of palliative care to people with intellectual disabilities.
Authors:
Ryan, Karen; McEvoy, John; Guerin, Suzanne; Dodd, Philip
Affiliation:
St Francis Hospice - Palliative Medicine, Dublin, Ireland. kryan@sfh.ie
Citation:
An exploration of the experience, confidence and attitudes of staff to the provision of palliative care to people with intellectual disabilities. 2010, 24 (6):566-72 Palliat Med
Journal:
Palliative medicine
Issue Date:
Sep-2010
URI:
http://hdl.handle.net/10147/221208
DOI:
10.1177/0269216310371413
PubMed ID:
20558434
Abstract:
Research suggests that shortcomings exist in the provision of palliative care to people with intellectual disabilities. This mixed-methods study aimed to describe the experience, confidence and attitudes of staff to the provision of palliative care to people with intellectual disabilities. The sample was drawn from the population of one Health Service Executive area in Ireland. Staff from intellectual disability and palliative care services completed surveys and participated in focus group discussions. Three hundred and eighty-nine questionnaires were distributed and 16 focus groups were held. Fifty-nine per cent of palliative care staff and 67% of intellectual disability services staff had cared for someone with intellectual disability who had died but level of experience was low. Both palliative care and intellectual disability services staff lacked confidence in their ability to provide palliative care. Staff were challenged by perceived 'differences' and 'difficulties' in the provision of care. They endorsed a partnership approach to care but focus group discussions revealed that a shared desire to cooperate was insufficient to guarantee effective collaboration.
Item Type:
Article
Language:
en
MeSH:
Attitude of Health Personnel; Attitude to Health; Clinical Competence; Focus Groups; Health Knowledge, Attitudes, Practice; Humans; Intellectual Disability; Ireland; Palliative Care; Questionnaires
ISSN:
1477-030X

Full metadata record

DC FieldValue Language
dc.contributor.authorRyan, Karenen_GB
dc.contributor.authorMcEvoy, Johnen_GB
dc.contributor.authorGuerin, Suzanneen_GB
dc.contributor.authorDodd, Philipen_GB
dc.date.accessioned2012-04-30T15:26:26Z-
dc.date.available2012-04-30T15:26:26Z-
dc.date.issued2010-09-
dc.identifier.citationAn exploration of the experience, confidence and attitudes of staff to the provision of palliative care to people with intellectual disabilities. 2010, 24 (6):566-72 Palliat Meden_GB
dc.identifier.issn1477-030X-
dc.identifier.pmid20558434-
dc.identifier.doi10.1177/0269216310371413-
dc.identifier.urihttp://hdl.handle.net/10147/221208-
dc.description.abstractResearch suggests that shortcomings exist in the provision of palliative care to people with intellectual disabilities. This mixed-methods study aimed to describe the experience, confidence and attitudes of staff to the provision of palliative care to people with intellectual disabilities. The sample was drawn from the population of one Health Service Executive area in Ireland. Staff from intellectual disability and palliative care services completed surveys and participated in focus group discussions. Three hundred and eighty-nine questionnaires were distributed and 16 focus groups were held. Fifty-nine per cent of palliative care staff and 67% of intellectual disability services staff had cared for someone with intellectual disability who had died but level of experience was low. Both palliative care and intellectual disability services staff lacked confidence in their ability to provide palliative care. Staff were challenged by perceived 'differences' and 'difficulties' in the provision of care. They endorsed a partnership approach to care but focus group discussions revealed that a shared desire to cooperate was insufficient to guarantee effective collaboration.-
dc.language.isoenen
dc.rightsArchived with thanks to Palliative medicineen_GB
dc.subject.meshAttitude of Health Personnel-
dc.subject.meshAttitude to Health-
dc.subject.meshClinical Competence-
dc.subject.meshFocus Groups-
dc.subject.meshHealth Knowledge, Attitudes, Practice-
dc.subject.meshHumans-
dc.subject.meshIntellectual Disability-
dc.subject.meshIreland-
dc.subject.meshPalliative Care-
dc.subject.meshQuestionnaires-
dc.titleAn exploration of the experience, confidence and attitudes of staff to the provision of palliative care to people with intellectual disabilities.en_GB
dc.typeArticleen
dc.contributor.departmentSt Francis Hospice - Palliative Medicine, Dublin, Ireland. kryan@sfh.ieen_GB
dc.identifier.journalPalliative medicineen_GB
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