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| Title: | Opening conversations Developing a model for The Alzheimer Society of Ireland Developing a model for The Alzheimer Society of Ireland of best-practice palliative care interventions for people with dementia and their carers |
| Authors: | MacConville, Úna Dr. |
| Affiliation: | Centre for Death and Society,University of Bath, Bath, UK. |
| Publisher: | Alzheimer Society of Ireland |
| Issue Date: | 2011 |
| URI: | http://hdl.handle.net/10147/212749 |
| Additional Links: | http://www.alzheimer.ie/ |
| Type: | Report |
| Language: | en |
| Description: | Palliative care and end-of-life issues for people with dementia are pertinent areas for
research, policy and practice in dementia care. The Alzheimer Society of Ireland (ASI)
is the national leader in understanding and providing dementia-specific supports and
services, including the development of palliative care for people with dementia.
‘Opening Conversations’ was a small-scale qualitative research project aimed at
developing a model of best-practice palliative care interventions for people with
dementia in order to integrate palliative care interventions into ASI service planning.
It also aimed to deepen an understanding of what palliative care means within the
context of dementia care, as well as understanding the specific end-of-life issues for
people with dementia, their carers and ASI and other service providers. This research
proposes a model of dementia palliative care based on the understanding that the
provision of good-quality end-of-life care for people with dementia and their families
begins at the time of diagnosis and is not confined to the end stage of the illness
or to the period in which the person with dementia is actively dying.
A number of research activities were developed on the basis of key issues identified
by service managers and team members. Liaison meetings were ongoing throughout
the research, incorporating ongoing reflective practice, evaluation and review. Research
activities included conversations with people with dementia and family members and
carers about end-of-life care; conversations with long-term service providers about
the transition to long-term care; a review of ASI information provision, both current
and future; and a survey of ASI staff regarding the end-of-life/palliative care issues. |
| Keywords: | PALLIATIVE CARE
DEATH, DISEASE AND DISABILITY
DEMENTIA
CARER
ALZHEIMER'S DISEASE |
| Appears in Collections: | Alzheimer Society of Ireland
|
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