Opening conversations Developing a model for The Alzheimer Society of Ireland Developing a model for The Alzheimer Society of Ireland of best-practice palliative care interventions for people with dementia and their carers

2.50
Hdl Handle:
http://hdl.handle.net/10147/212749
Title:
Opening conversations Developing a model for The Alzheimer Society of Ireland Developing a model for The Alzheimer Society of Ireland of best-practice palliative care interventions for people with dementia and their carers
Authors:
MacConville, Úna Dr.
Affiliation:
Centre for Death and Society,University of Bath, Bath, UK.
Publisher:
Alzheimer Society of Ireland
Issue Date:
2011
URI:
http://hdl.handle.net/10147/212749
Additional Links:
http://www.alzheimer.ie/
Item Type:
Report
Language:
en
Description:
Palliative care and end-of-life issues for people with dementia are pertinent areas for research, policy and practice in dementia care. The Alzheimer Society of Ireland (ASI) is the national leader in understanding and providing dementia-specific supports and services, including the development of palliative care for people with dementia. ‘Opening Conversations’ was a small-scale qualitative research project aimed at developing a model of best-practice palliative care interventions for people with dementia in order to integrate palliative care interventions into ASI service planning. It also aimed to deepen an understanding of what palliative care means within the context of dementia care, as well as understanding the specific end-of-life issues for people with dementia, their carers and ASI and other service providers. This research proposes a model of dementia palliative care based on the understanding that the provision of good-quality end-of-life care for people with dementia and their families begins at the time of diagnosis and is not confined to the end stage of the illness or to the period in which the person with dementia is actively dying. A number of research activities were developed on the basis of key issues identified by service managers and team members. Liaison meetings were ongoing throughout the research, incorporating ongoing reflective practice, evaluation and review. Research activities included conversations with people with dementia and family members and carers about end-of-life care; conversations with long-term service providers about the transition to long-term care; a review of ASI information provision, both current and future; and a survey of ASI staff regarding the end-of-life/palliative care issues.
Keywords:
PALLIATIVE CARE; DEATH, DISEASE AND DISABILITY; DEMENTIA; CARER; ALZHEIMER'S DISEASE

Full metadata record

DC FieldValue Language
dc.contributor.authorMacConville, Úna Dr.en
dc.date.accessioned2012-02-24T15:45:41Z-
dc.date.available2012-02-24T15:45:41Z-
dc.date.issued2011-
dc.identifier.urihttp://hdl.handle.net/10147/212749-
dc.descriptionPalliative care and end-of-life issues for people with dementia are pertinent areas for research, policy and practice in dementia care. The Alzheimer Society of Ireland (ASI) is the national leader in understanding and providing dementia-specific supports and services, including the development of palliative care for people with dementia. ‘Opening Conversations’ was a small-scale qualitative research project aimed at developing a model of best-practice palliative care interventions for people with dementia in order to integrate palliative care interventions into ASI service planning. It also aimed to deepen an understanding of what palliative care means within the context of dementia care, as well as understanding the specific end-of-life issues for people with dementia, their carers and ASI and other service providers. This research proposes a model of dementia palliative care based on the understanding that the provision of good-quality end-of-life care for people with dementia and their families begins at the time of diagnosis and is not confined to the end stage of the illness or to the period in which the person with dementia is actively dying. A number of research activities were developed on the basis of key issues identified by service managers and team members. Liaison meetings were ongoing throughout the research, incorporating ongoing reflective practice, evaluation and review. Research activities included conversations with people with dementia and family members and carers about end-of-life care; conversations with long-term service providers about the transition to long-term care; a review of ASI information provision, both current and future; and a survey of ASI staff regarding the end-of-life/palliative care issues.en
dc.language.isoenen
dc.publisherAlzheimer Society of Irelanden
dc.relation.urlhttp://www.alzheimer.ie/en
dc.subjectPALLIATIVE CAREen
dc.subjectDEATH, DISEASE AND DISABILITYen
dc.subjectDEMENTIAen
dc.subjectCARERen
dc.subjectALZHEIMER'S DISEASEen
dc.titleOpening conversations Developing a model for The Alzheimer Society of Ireland Developing a model for The Alzheimer Society of Ireland of best-practice palliative care interventions for people with dementia and their carersen
dc.typeReporten
dc.contributor.departmentCentre for Death and Society,University of Bath, Bath, UK.en
All Items in Lenus,the Irish health repository are protected by copyright, with all rights reserved, unless otherwise indicated.