An exploration of the lived experiences of individuals with relapsed multiple myeloma.

Hdl Handle:
http://hdl.handle.net/10147/207944
Title:
An exploration of the lived experiences of individuals with relapsed multiple myeloma.
Authors:
Maher, K; de Vries, K
Affiliation:
Haemaology Day Ward, Waterford Regional Hospital, Waterford, Ireland.
Citation:
Eur J Cancer Care (Engl). 2011 Mar;20(2):267-75. doi:, 10.1111/j.1365-2354.2010.01234.x. Epub 2010 Oct 18.
Journal:
European journal of cancer care
Issue Date:
1-Feb-2012
URI:
http://hdl.handle.net/10147/207944
DOI:
10.1111/j.1365-2354.2010.01234.x
PubMed ID:
20950368
Abstract:
The experience of living with relapsed Multiple Myeloma (myeloma) for eight patients accessing treatment within a haematology unit in a large London hospital is explored in this study. Myeloma is recognised as incurable and is sometimes described as an 'incurable chronic disease' with a main treatment option of chemotherapy. Hermeneutic phenomenology was the methodology used in conducting the study and data were collected through open-ended, unstructured interviews. Findings suggest that living with relapsed myeloma in the context of a chronic illness causes an ever-shifting perspective between illness and wellness consequently maintaining a state of uncertainty. The patients in this study placed importance on the emotional aspect of their experience. Hope, intuitive knowing and a fighting spirit were expressed as required positive elements that enabled living with relapsed myeloma. These assisted in maintaining normality, coping with bad news and adjusting to the illness. Pervading through the themes was the need to control uncertainty. Having strong support from significant others provided something to live for and the necessary social support required to promote a new orientation to life.
Language:
eng
MeSH:
*Adaptation, Psychological; Aged; Attitude to Health; Chronic Disease; Female; Humans; Male; Middle Aged; Multiple Myeloma/*psychology; Professional-Patient Relations; Qualitative Research; Questionnaires; Recurrence; Social Support; Trust; Uncertainty
ISSN:
1365-2354 (Electronic); 0961-5423 (Linking)

Full metadata record

DC FieldValue Language
dc.contributor.authorMaher, Ken_GB
dc.contributor.authorde Vries, Ken_GB
dc.date.accessioned2012-02-01T10:52:08Z-
dc.date.available2012-02-01T10:52:08Z-
dc.date.issued2012-02-01T10:52:08Z-
dc.identifier.citationEur J Cancer Care (Engl). 2011 Mar;20(2):267-75. doi:, 10.1111/j.1365-2354.2010.01234.x. Epub 2010 Oct 18.en_GB
dc.identifier.issn1365-2354 (Electronic)en_GB
dc.identifier.issn0961-5423 (Linking)en_GB
dc.identifier.pmid20950368en_GB
dc.identifier.doi10.1111/j.1365-2354.2010.01234.xen_GB
dc.identifier.urihttp://hdl.handle.net/10147/207944-
dc.description.abstractThe experience of living with relapsed Multiple Myeloma (myeloma) for eight patients accessing treatment within a haematology unit in a large London hospital is explored in this study. Myeloma is recognised as incurable and is sometimes described as an 'incurable chronic disease' with a main treatment option of chemotherapy. Hermeneutic phenomenology was the methodology used in conducting the study and data were collected through open-ended, unstructured interviews. Findings suggest that living with relapsed myeloma in the context of a chronic illness causes an ever-shifting perspective between illness and wellness consequently maintaining a state of uncertainty. The patients in this study placed importance on the emotional aspect of their experience. Hope, intuitive knowing and a fighting spirit were expressed as required positive elements that enabled living with relapsed myeloma. These assisted in maintaining normality, coping with bad news and adjusting to the illness. Pervading through the themes was the need to control uncertainty. Having strong support from significant others provided something to live for and the necessary social support required to promote a new orientation to life.en_GB
dc.language.isoengen_GB
dc.subject.mesh*Adaptation, Psychologicalen_GB
dc.subject.meshAgeden_GB
dc.subject.meshAttitude to Healthen_GB
dc.subject.meshChronic Diseaseen_GB
dc.subject.meshFemaleen_GB
dc.subject.meshHumansen_GB
dc.subject.meshMaleen_GB
dc.subject.meshMiddle Ageden_GB
dc.subject.meshMultiple Myeloma/*psychologyen_GB
dc.subject.meshProfessional-Patient Relationsen_GB
dc.subject.meshQualitative Researchen_GB
dc.subject.meshQuestionnairesen_GB
dc.subject.meshRecurrenceen_GB
dc.subject.meshSocial Supporten_GB
dc.subject.meshTrusten_GB
dc.subject.meshUncertaintyen_GB
dc.titleAn exploration of the lived experiences of individuals with relapsed multiple myeloma.en_GB
dc.contributor.departmentHaemaology Day Ward, Waterford Regional Hospital, Waterford, Ireland.en_GB
dc.identifier.journalEuropean journal of cancer careen_GB
dc.description.provinceMunster-
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