Development, validation, and implementation of a questionnaire assessing disease knowledge and understanding in adult cystic fibrosis patients.

Hdl Handle:
http://hdl.handle.net/10147/207604
Title:
Development, validation, and implementation of a questionnaire assessing disease knowledge and understanding in adult cystic fibrosis patients.
Authors:
Siklosi, Karen R; Gallagher, Charles G; McKone, Edward F
Affiliation:
National Referral Centre for Adult Cystic Fibrosis, St. Vincent's University, Hospital, Dublin, Ireland.
Citation:
J Cyst Fibros. 2010 Dec;9(6):400-5. Epub 2010 Aug 14.
Journal:
Journal of cystic fibrosis : official journal of the European Cystic Fibrosis, Society
Issue Date:
1-Feb-2012
URI:
http://hdl.handle.net/10147/207604
DOI:
10.1016/j.jcf.2010.07.001
PubMed ID:
20709606
Abstract:
BACKGROUND: The number of adults living with cystic fibrosis (CF) is increasing, necessitating an assessment of knowledge in this growing population. METHODS: A questionnaire assessing CF knowledge was completed by 100 CF patients (median age: 26.0 years, range 17-49 years; median FEV: 57.0% predicted, range 20-127% predicted). Level of knowledge was correlated with clinical and sociodemographic characteristics. RESULTS: Questionnaire validation showed acceptable internal consistency (alpha=0.75) and test-retest reliability (0.94). Patients had fair overall understanding of CF (mean=72.4%, SD=13.1), with greater knowledge of lung and gastrointestinal topics (mean=81.6%, SD=11.6) than reproduction and genetics topics (mean=57.9%, SD=24.1). Females and those with post-secondary education scored significantly higher (p<0.05). CONCLUSIONS: This study validated a questionnaire that can be utilized to assess CF knowledge. Although CF patients understand most aspects of their disease, knowledge deficits are common - particularly regarding genetics and reproduction - and should be considered when developing CF education programs.
Language:
eng
MeSH:
Adolescent; Adult; Cystic Fibrosis/*psychology; Female; *Health Education; *Health Knowledge, Attitudes, Practice; Humans; Male; Middle Aged; Questionnaires/*standards; Reproducibility of Results; Young Adult
ISSN:
1873-5010 (Electronic); 1569-1993 (Linking)

Full metadata record

DC FieldValue Language
dc.contributor.authorSiklosi, Karen Ren_GB
dc.contributor.authorGallagher, Charles Gen_GB
dc.contributor.authorMcKone, Edward Fen_GB
dc.date.accessioned2012-02-01T10:32:38Z-
dc.date.available2012-02-01T10:32:38Z-
dc.date.issued2012-02-01T10:32:38Z-
dc.identifier.citationJ Cyst Fibros. 2010 Dec;9(6):400-5. Epub 2010 Aug 14.en_GB
dc.identifier.issn1873-5010 (Electronic)en_GB
dc.identifier.issn1569-1993 (Linking)en_GB
dc.identifier.pmid20709606en_GB
dc.identifier.doi10.1016/j.jcf.2010.07.001en_GB
dc.identifier.urihttp://hdl.handle.net/10147/207604-
dc.description.abstractBACKGROUND: The number of adults living with cystic fibrosis (CF) is increasing, necessitating an assessment of knowledge in this growing population. METHODS: A questionnaire assessing CF knowledge was completed by 100 CF patients (median age: 26.0 years, range 17-49 years; median FEV: 57.0% predicted, range 20-127% predicted). Level of knowledge was correlated with clinical and sociodemographic characteristics. RESULTS: Questionnaire validation showed acceptable internal consistency (alpha=0.75) and test-retest reliability (0.94). Patients had fair overall understanding of CF (mean=72.4%, SD=13.1), with greater knowledge of lung and gastrointestinal topics (mean=81.6%, SD=11.6) than reproduction and genetics topics (mean=57.9%, SD=24.1). Females and those with post-secondary education scored significantly higher (p<0.05). CONCLUSIONS: This study validated a questionnaire that can be utilized to assess CF knowledge. Although CF patients understand most aspects of their disease, knowledge deficits are common - particularly regarding genetics and reproduction - and should be considered when developing CF education programs.en_GB
dc.language.isoengen_GB
dc.subject.meshAdolescenten_GB
dc.subject.meshAdulten_GB
dc.subject.meshCystic Fibrosis/*psychologyen_GB
dc.subject.meshFemaleen_GB
dc.subject.mesh*Health Educationen_GB
dc.subject.mesh*Health Knowledge, Attitudes, Practiceen_GB
dc.subject.meshHumansen_GB
dc.subject.meshMaleen_GB
dc.subject.meshMiddle Ageden_GB
dc.subject.meshQuestionnaires/*standardsen_GB
dc.subject.meshReproducibility of Resultsen_GB
dc.subject.meshYoung Adulten_GB
dc.titleDevelopment, validation, and implementation of a questionnaire assessing disease knowledge and understanding in adult cystic fibrosis patients.en_GB
dc.contributor.departmentNational Referral Centre for Adult Cystic Fibrosis, St. Vincent's University, Hospital, Dublin, Ireland.en_GB
dc.identifier.journalJournal of cystic fibrosis : official journal of the European Cystic Fibrosis, Societyen_GB
dc.description.provinceLeinster-

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