Health-related quality of life after prolonged pediatric intensive care unit stay.

Hdl Handle:
http://hdl.handle.net/10147/207433
Title:
Health-related quality of life after prolonged pediatric intensive care unit stay.
Authors:
Conlon, Niamh P; Breatnach, Cormac; O'Hare, Brendan P; Mannion, David W; Lyons, Barry J
Affiliation:
Department of Anaesthesia and Intensive Care Medicine, Our Lady's Hospital for, Sick Children, Crumlin Road, Crumlin, Dublin, Ireland.
Citation:
Pediatr Crit Care Med. 2009 Jan;10(1):41-4.
Journal:
Pediatric critical care medicine : a journal of the Society of Critical Care, Medicine and the World Federation of Pediatric Intensive and Critical Care, Societies
Issue Date:
1-Feb-2012
URI:
http://hdl.handle.net/10147/207433
DOI:
10.1097/PCC.0b013e31819371f6
PubMed ID:
19057434
Abstract:
OBJECTIVE: To investigate the long-term health-related quality of life (HRQOL) outcomes for patients requiring at least 28 days of pediatric intensive care. DESIGN: Retrospective cohort and prospective follow-up study. SETTING: A 21-bed pediatric intensive care unit (PICU) in a university-affiliated, tertiary referral pediatric hospital. PATIENTS: One hundred ninety-three patients who spent 28 days or longer in the PICU between January 1, 1997 and December 31, 2004. INTERVENTIONS: Quality of life was measured using the Pediatric Quality of Life Inventory (Peds QL 4.0) parent-proxy version at 2 to 10 yrs after discharge. The PedsQL 4.0 is a modular measure of HRQOL, which is reliable in children aged 2 to 18 yrs. It generates a total score and physical, emotional, social, school, and psychosocial subscores. MEASUREMENTS AND MAIN RESULTS: Of the 193 patients, 41 died during their PICU admission and 27 died between PICU discharge and follow-up. Quality of life questionnaires were posted to parents of 108 of the 125 survivors and 70 were returned completed. Forty children (57.1%) had scores indicating a normal quality of life, whereas 30 (42.9%) had scores indicating impaired HRQOL. Of these, 14 (20%) had scores indicating poor quality of life with ongoing disabling health problems requiring hospitalization or the equivalent. CONCLUSIONS: Our results indicate that, while long PICU stay is associated with significant mortality, the long-term HRQOL is normal for the majority of surviving children.
Language:
eng
MeSH:
Adolescent; Age Factors; Child; Child, Preschool; Cohort Studies; Continuity of Patient Care/statistics & numerical data; Critical Care/*methods; Critical Illness/therapy; Female; Follow-Up Studies; Hospitals, University; Humans; *Intensive Care Units, Pediatric; Ireland; Length of Stay; Long-Term Care; Male; Patient Discharge; Probability; *Quality of Life; Retrospective Studies; Risk Factors; Sex Factors; Statistics, Nonparametric; Time Factors
ISSN:
1529-7535 (Print); 1529-7535 (Linking)

Full metadata record

DC FieldValue Language
dc.contributor.authorConlon, Niamh Pen_GB
dc.contributor.authorBreatnach, Cormacen_GB
dc.contributor.authorO'Hare, Brendan Pen_GB
dc.contributor.authorMannion, David Wen_GB
dc.contributor.authorLyons, Barry Jen_GB
dc.date.accessioned2012-02-01T10:24:53Z-
dc.date.available2012-02-01T10:24:53Z-
dc.date.issued2012-02-01T10:24:53Z-
dc.identifier.citationPediatr Crit Care Med. 2009 Jan;10(1):41-4.en_GB
dc.identifier.issn1529-7535 (Print)en_GB
dc.identifier.issn1529-7535 (Linking)en_GB
dc.identifier.pmid19057434en_GB
dc.identifier.doi10.1097/PCC.0b013e31819371f6en_GB
dc.identifier.urihttp://hdl.handle.net/10147/207433-
dc.description.abstractOBJECTIVE: To investigate the long-term health-related quality of life (HRQOL) outcomes for patients requiring at least 28 days of pediatric intensive care. DESIGN: Retrospective cohort and prospective follow-up study. SETTING: A 21-bed pediatric intensive care unit (PICU) in a university-affiliated, tertiary referral pediatric hospital. PATIENTS: One hundred ninety-three patients who spent 28 days or longer in the PICU between January 1, 1997 and December 31, 2004. INTERVENTIONS: Quality of life was measured using the Pediatric Quality of Life Inventory (Peds QL 4.0) parent-proxy version at 2 to 10 yrs after discharge. The PedsQL 4.0 is a modular measure of HRQOL, which is reliable in children aged 2 to 18 yrs. It generates a total score and physical, emotional, social, school, and psychosocial subscores. MEASUREMENTS AND MAIN RESULTS: Of the 193 patients, 41 died during their PICU admission and 27 died between PICU discharge and follow-up. Quality of life questionnaires were posted to parents of 108 of the 125 survivors and 70 were returned completed. Forty children (57.1%) had scores indicating a normal quality of life, whereas 30 (42.9%) had scores indicating impaired HRQOL. Of these, 14 (20%) had scores indicating poor quality of life with ongoing disabling health problems requiring hospitalization or the equivalent. CONCLUSIONS: Our results indicate that, while long PICU stay is associated with significant mortality, the long-term HRQOL is normal for the majority of surviving children.en_GB
dc.language.isoengen_GB
dc.subject.meshAdolescenten_GB
dc.subject.meshAge Factorsen_GB
dc.subject.meshChilden_GB
dc.subject.meshChild, Preschoolen_GB
dc.subject.meshCohort Studiesen_GB
dc.subject.meshContinuity of Patient Care/statistics & numerical dataen_GB
dc.subject.meshCritical Care/*methodsen_GB
dc.subject.meshCritical Illness/therapyen_GB
dc.subject.meshFemaleen_GB
dc.subject.meshFollow-Up Studiesen_GB
dc.subject.meshHospitals, Universityen_GB
dc.subject.meshHumansen_GB
dc.subject.mesh*Intensive Care Units, Pediatricen_GB
dc.subject.meshIrelanden_GB
dc.subject.meshLength of Stayen_GB
dc.subject.meshLong-Term Careen_GB
dc.subject.meshMaleen_GB
dc.subject.meshPatient Dischargeen_GB
dc.subject.meshProbabilityen_GB
dc.subject.mesh*Quality of Lifeen_GB
dc.subject.meshRetrospective Studiesen_GB
dc.subject.meshRisk Factorsen_GB
dc.subject.meshSex Factorsen_GB
dc.subject.meshStatistics, Nonparametricen_GB
dc.subject.meshTime Factorsen_GB
dc.titleHealth-related quality of life after prolonged pediatric intensive care unit stay.en_GB
dc.contributor.departmentDepartment of Anaesthesia and Intensive Care Medicine, Our Lady's Hospital for, Sick Children, Crumlin Road, Crumlin, Dublin, Ireland.en_GB
dc.identifier.journalPediatric critical care medicine : a journal of the Society of Critical Care, Medicine and the World Federation of Pediatric Intensive and Critical Care, Societiesen_GB
dc.description.provinceLeinster-

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