The health care journeys experienced by people with epilepsy in Ireland: what are the implications for future service reform and development?

Hdl Handle:
http://hdl.handle.net/10147/207189
Title:
The health care journeys experienced by people with epilepsy in Ireland: what are the implications for future service reform and development?
Authors:
Varley, J; Delanty, N; Normand, C; Fitzsimons, M
Affiliation:
Epilepsy Research Department, Beaumont Hospital, Dublin, Ireland., trimvarleys@gmail.com
Citation:
Epilepsy Behav. 2011 Feb;20(2):299-307. Epub 2010 Dec 30.
Journal:
Epilepsy & behavior : E&B
Issue Date:
1-Feb-2012
URI:
http://hdl.handle.net/10147/207189
DOI:
10.1016/j.yebeh.2010.10.020
PubMed ID:
21195671
Abstract:
Opportunities exist to significantly improve the quality and efficiency of epilepsy care in Ireland. Historically, epilepsy research has focused on quantitative methodologies that often fail to capture the invaluable insight of patient experiences as they negotiate their health care needs. Using a phenomenological approach, we conducted one-to-one interviews with people with epilepsy, reporting on their understanding of their health care journey from onset of symptoms through to their first interaction with specialist epilepsy services. Following analysis of the data, five major themes emerged: delayed access to specialist epilepsy review; uncertainty regarding the competency and function of primary care services; significant unmet needs for female patients with epilepsy; disorganization of existing epilepsy services; and unmet patient information needs. The findings reveal important insights into the challenges experienced by people with epilepsy in Ireland and identify the opportunities for future service reorganization to improve the quality and efficiency of care provided.
Language:
eng
MeSH:
Adolescent; Adult; Aged; Child; Child, Preschool; Delivery of Health Care/*methods; Epilepsy/epidemiology/*therapy; Female; Health Services Needs and Demand/*statistics & numerical data; Humans; Infant; Infant, Newborn; Interviews as Topic; Ireland/epidemiology; Male; Middle Aged; Retrospective Studies; Young Adult
ISSN:
1525-5069 (Electronic); 1525-5050 (Linking)

Full metadata record

DC FieldValue Language
dc.contributor.authorVarley, Jen_GB
dc.contributor.authorDelanty, Nen_GB
dc.contributor.authorNormand, Cen_GB
dc.contributor.authorFitzsimons, Men_GB
dc.date.accessioned2012-02-01T10:01:29Z-
dc.date.available2012-02-01T10:01:29Z-
dc.date.issued2012-02-01T10:01:29Z-
dc.identifier.citationEpilepsy Behav. 2011 Feb;20(2):299-307. Epub 2010 Dec 30.en_GB
dc.identifier.issn1525-5069 (Electronic)en_GB
dc.identifier.issn1525-5050 (Linking)en_GB
dc.identifier.pmid21195671en_GB
dc.identifier.doi10.1016/j.yebeh.2010.10.020en_GB
dc.identifier.urihttp://hdl.handle.net/10147/207189-
dc.description.abstractOpportunities exist to significantly improve the quality and efficiency of epilepsy care in Ireland. Historically, epilepsy research has focused on quantitative methodologies that often fail to capture the invaluable insight of patient experiences as they negotiate their health care needs. Using a phenomenological approach, we conducted one-to-one interviews with people with epilepsy, reporting on their understanding of their health care journey from onset of symptoms through to their first interaction with specialist epilepsy services. Following analysis of the data, five major themes emerged: delayed access to specialist epilepsy review; uncertainty regarding the competency and function of primary care services; significant unmet needs for female patients with epilepsy; disorganization of existing epilepsy services; and unmet patient information needs. The findings reveal important insights into the challenges experienced by people with epilepsy in Ireland and identify the opportunities for future service reorganization to improve the quality and efficiency of care provided.en_GB
dc.language.isoengen_GB
dc.subject.meshAdolescenten_GB
dc.subject.meshAdulten_GB
dc.subject.meshAgeden_GB
dc.subject.meshChilden_GB
dc.subject.meshChild, Preschoolen_GB
dc.subject.meshDelivery of Health Care/*methodsen_GB
dc.subject.meshEpilepsy/epidemiology/*therapyen_GB
dc.subject.meshFemaleen_GB
dc.subject.meshHealth Services Needs and Demand/*statistics & numerical dataen_GB
dc.subject.meshHumansen_GB
dc.subject.meshInfanten_GB
dc.subject.meshInfant, Newbornen_GB
dc.subject.meshInterviews as Topicen_GB
dc.subject.meshIreland/epidemiologyen_GB
dc.subject.meshMaleen_GB
dc.subject.meshMiddle Ageden_GB
dc.subject.meshRetrospective Studiesen_GB
dc.subject.meshYoung Adulten_GB
dc.titleThe health care journeys experienced by people with epilepsy in Ireland: what are the implications for future service reform and development?en_GB
dc.contributor.departmentEpilepsy Research Department, Beaumont Hospital, Dublin, Ireland., trimvarleys@gmail.comen_GB
dc.identifier.journalEpilepsy & behavior : E&Ben_GB
dc.description.provinceLeinster-

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