Implementation of newborn cystic fibrosis screening in the Republic of Ireland

Hdl Handle:
http://hdl.handle.net/10147/104978
Title:
Implementation of newborn cystic fibrosis screening in the Republic of Ireland
Other Titles:
Report of the newborn cystic fibrosis screening working group
Authors:
Cystic Fibrosis Working Group
Affiliation:
Department of Health and Children (DOHC)
Publisher:
Department of Health and Children (DOHC)
Issue Date:
Mar-2004
URI:
http://hdl.handle.net/10147/104978
Item Type:
Report
Language:
en
Description:
In March 1999, a working group was convened by Dr. Jim Kiely, Chief Medical Officer, Department of Health and Children. Its brief was to “Examine and make recommendations regarding the scientific validity, feasibility, the ethical implications and possible implementation of a routine newborn screening programme for Cystic Fibrosis in the Republic of Ireland”. This working group produced a report 1, The Interim Report of the Working Group on Newborn Cystic Fibrosis Screening in April 2000, that recommended; “A newborn screening programme for Cystic Fibrosis in the Republic of Ireland should be established. The Department of Health and Children should establish a task group to devise and plan a detailed mechanism for the implementation of the newborn CF screening programme. The successful implementation of this screening programme will be contingent on ongoing agreement upon quality standards, treatment protocols and the further development of specialist centres for the management and treatment of CF. These should be reviewed by the task group as part of the development of the implementation process. The CF programme will be incorporated into the existing newborn screening programme, building on existing laboratory expertise and facilities, and expertise in genetic counselling. It is recommended that all tests and reports from the newborn screening programme be processed at one centre only.” Following a request from Dr. Jim Kiely, the former Best Health for Children Programme (now Programme of Action for Children) convened a working group in January 2002, to “Establish the requirements in terms of structure, organisation, services and resources to effectively implement a new-born screening programme for Cystic Fibrosis”.
Keywords:
CYSTIC FIBROSIS; HEALTH SCREENING

Full metadata record

DC FieldValue Language
dc.contributor.authorCystic Fibrosis Working Groupen
dc.date.accessioned2010-06-17T10:24:57Z-
dc.date.available2010-06-17T10:24:57Z-
dc.date.issued2004-03-
dc.identifier.urihttp://hdl.handle.net/10147/104978-
dc.descriptionIn March 1999, a working group was convened by Dr. Jim Kiely, Chief Medical Officer, Department of Health and Children. Its brief was to “Examine and make recommendations regarding the scientific validity, feasibility, the ethical implications and possible implementation of a routine newborn screening programme for Cystic Fibrosis in the Republic of Ireland”. This working group produced a report 1, The Interim Report of the Working Group on Newborn Cystic Fibrosis Screening in April 2000, that recommended; “A newborn screening programme for Cystic Fibrosis in the Republic of Ireland should be established. The Department of Health and Children should establish a task group to devise and plan a detailed mechanism for the implementation of the newborn CF screening programme. The successful implementation of this screening programme will be contingent on ongoing agreement upon quality standards, treatment protocols and the further development of specialist centres for the management and treatment of CF. These should be reviewed by the task group as part of the development of the implementation process. The CF programme will be incorporated into the existing newborn screening programme, building on existing laboratory expertise and facilities, and expertise in genetic counselling. It is recommended that all tests and reports from the newborn screening programme be processed at one centre only.” Following a request from Dr. Jim Kiely, the former Best Health for Children Programme (now Programme of Action for Children) convened a working group in January 2002, to “Establish the requirements in terms of structure, organisation, services and resources to effectively implement a new-born screening programme for Cystic Fibrosis”.en
dc.language.isoenen
dc.publisherDepartment of Health and Children (DOHC)en
dc.subjectCYSTIC FIBROSISen
dc.subjectHEALTH SCREENINGen
dc.titleImplementation of newborn cystic fibrosis screening in the Republic of Irelanden
dc.title.alternativeReport of the newborn cystic fibrosis screening working groupen
dc.typeReporten
dc.contributor.departmentDepartment of Health and Children (DOHC)en
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